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Rituximab tomorrow

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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #75 on: April 23, 2009, 02:58:27 PM »
Thanks Dore and Umair,

Yes, Umair I did receive the PM - thank god lil A's head ache and light sensitivity resolved on Saturday when his headache and nausea went away.   He hasn't complained about anything since then.  I am giving him 50mg of selenium, which is advised by Dr. Vichinsky and which is usually in vitamin supplements such as Osteocare (I am giving them the liquid which doesn't contain selenium and copper that is why I am giving it to him separately.)  Thanks again for the info, I will be sure to reference it.

Dore, what a sweet message I will have lil A read it when he gets home.  It is very inspiring that you were able to lower your ferritin!  I wish you continued success.

Sharmin  :hugfriend :hugfriend
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Sharmin
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Offline nice friend

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Re: Rituximab tomorrow
« Reply #76 on: April 23, 2009, 04:12:03 PM »
Sharmin ,
 :) its nice to hear that things wasn't that much serious  and vanished off very quickly ... :goodluck Lil-A

Best Regards
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
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Umair
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Offline Manal

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Re: Rituximab tomorrow
« Reply #77 on: April 25, 2009, 11:59:19 PM »
Sharmin

Did you test the Hb after the last transfusion?????????/

manal
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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #78 on: April 26, 2009, 12:19:45 AM »
Hi Manal,

Thank you so much:) The morning after the last transfusion his hg was 149. m We haven't tested since then - so far he looks good.  His next blood test will be May 6th and transfusion is booked for May 8th.  I am hoping that the antibodies will decrease by then because of the last rituximab treatment - the antibodies he would have had before rituximab should be breaking down now.    I am hoping for the best. 

Sharmin  :hugfriend

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Sharmin
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Offline Manal

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Re: Rituximab tomorrow
« Reply #79 on: April 26, 2009, 12:24:31 AM »
He is in my prayers Sharmin and i really hope that everything will go the best it can be :hugfriend

manal

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Offline Andy Battaglia

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Re: Rituximab tomorrow
« Reply #80 on: April 26, 2009, 12:33:04 AM »
I'm really hoping that little A's previous transfusion was just a case of not all units of blood are equal and that it broke down faster than normal because of that. Perhaps it was a bit older or perhaps not all donors are equal. We will soon see if it was an isolated occurrence.
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Andy

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Offline Zaini

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Re: Rituximab tomorrow
« Reply #81 on: April 26, 2009, 06:55:46 AM »
Quote
We will soon see if it was an isolated occurrence.

I hope that's the case,my prayers are with you and Little A  :hugfriend

Zaini.
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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #82 on: April 26, 2009, 07:40:01 AM »
Thank you  :hugfriend
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Sharmin
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Offline T @ r ! Q

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Re: Rituximab tomorrow
« Reply #83 on: April 26, 2009, 07:46:07 AM »
Good luck lil A, i hope things get well for you soon.
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Offline nice friend

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Re: Rituximab tomorrow
« Reply #84 on: April 27, 2009, 08:40:02 AM »
Quote
I hope that's the case,my prayers are with you and Little A
Quote
Good luck lil A, i hope things get well for you soon.
Thinking and praying the same for you Lil-A , Best of Luck ...

Best Regards
Take Care
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline marziya

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Re: Rituximab tomorrow
« Reply #85 on: April 28, 2009, 11:37:13 AM »
Praying for lil A .Hope he responds well.
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Offline Dori

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Re: Rituximab tomorrow
« Reply #86 on: May 05, 2009, 12:36:11 PM »
Quote from: Sharmin on April 26, 2009, 12:19:45 AM
The morning after the last transfusion his hg was 149. m We haven't tested since then - so far he looks good.  His next blood test will be May 6th and transfusion is booked for May 8th.

Sharmin  :hugfriend



Do you always check your son's hgb after a blood transfusion? We have never done this, but especially this weeks I am very curiious about the after tx level of hgb.

I hope he is doing well,

Dore
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Offline Manal

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Re: Rituximab tomorrow
« Reply #87 on: May 05, 2009, 03:36:32 PM »
Sharmin,

Wishing you all the luck tomorrow in the hb test,please keep updated

manal
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Offline Sharmin

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Re: Rituximab tomorrow
« Reply #88 on: May 05, 2009, 10:32:28 PM »
Thank you my dear friends, he seems to have done well during the last 3 weeks.  I will post his hg tomorrow.  He had his last tx on April 17th and he is booked for tx on May 9. 

I hope that you all are doing well - love to everyone :)
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Sharmin
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Offline Canadian_Family

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Re: Rituximab tomorrow
« Reply #89 on: May 05, 2009, 11:42:59 PM »
Hi Sharmin,

Great news, we are crossing our fingers for the good news tomorrow. Best of luck.

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Regards.
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