19 weeks pregnant and found out today that baby has beta thalassemia major

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Offline Dori

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Hello Carisma,

When I post here for the first time I felt very down and did not had the energy to read all those posts. The day after I post I read that you have endome???? I have a friend with that too and she told me always that it is almost impossible to become pregnant with it. However her situation is completely different then yours. She got ulcerative colitis as her number #1 disease and is always in so much pain. It seems that UC is genetical and that is why she decided to never have a child (of her own). I do believe that UC is much worser than a red blood disease. My friend want the docs to operate her for emd?? but they don't want to do that because of the UC. Sounds that a bit similar to you? I really wish I had a magic stick to make her better.

I can not be a real part of this discussion. But I must say that I don't see things so bright as some of us do.
To all the mothers I want to say: Don't feel quilty!!

It's strange, but I never have thought about the fact that my mother has felt quilty about it. I have feel me always quilty that I was not that healthy child.

I really hope you pregnancy will go smoothly. Weren't you 27 weeks pregnant? That's almost 4 months. 5 months to go is September......?

Best wishes, Dore
p.s. not thal, but pyruvate kinase deficiency

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Offline Zaini

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Dore,


Quote
To all the mothers I want to say: Don't feel quilty!!

To all patients,please don't feel guilty,i think i am safe to say on all mom's behalf,that we are glad to have you in our lives,as our daughters or sons,we are proud of you,and we'll be there for you no matter what. :hugfriend

Zaini.

^*^Xaini^*^

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Offline Manal

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Quote
we are glad to have you in our lives,as our daughters or sons,we are proud of you,and we'll be there for you no matter what.


Well said :happyyes :happyyes :happyyes :happyyes :happyyes :happyyes :happyyes :happyyes :exactly :exactly :exactly :exactly :agree :agree :agree :yay
manal


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Offline Dori

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I hope the woman who start this topic is doing well.

 :flowers

Best wishes, Dore

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Offline Zaini

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Hope you are well Charishma  :hugfriend.

Zaini.
^*^Xaini^*^

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Offline Cari

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Hi guys,

I am doing really well - thank you so much for asking :hugfriend.  It has been a stressful few weeks  as i have had 2 close family members in the hospital but both are doing well and back at home now.

Other than that, things have been really good.  I have moved past being sad about our baby's condition and have accepted the fact that our little warrior is going to have to be one strong girl or boy!!!  I am doing a lot of research and learning so much. There are still things that I don't understand but I think these are are things I will have to go through in order to figure it out completely.

It is amazing to me how many great people are out there willing to help in the time of need.
I spoke with Eileen from CAF recently and she mentioned there is a specialist in Atlanta that I can go to so that is wonderful!  Eileen is also helping me find a pediatric doctor here.  She spoke with me for a long time the other day and I was able to obtain a lot of information.   

Every day I feel more and more excited about seeing my little one.  Sometimes I get scared and I just hope I will be strong enough to get my baby through it...but I think that is only natural.

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Offline Manal

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I am happy that you feel much better, please keep reading cause knowledge is power and always feel free to ask about anything that you don't understand. Keep it up :hugfriend

manal

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Offline Sharmin

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Carisma,

I am glad that your family members are well and home from the hospital. 

It was so great seeing you message.  I am glad that you spoke with Eileen, she is a wonderful person.   Your little one will be brave and wonderful he/she is lucky to have you for a mom :) 

Much love,

Sharmin  :hugfriend
Sharmin

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Offline Zaini

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Carisma,

I am so happy for you  :hugfriend yes your little warrior will be strong and you'll even draw your strength from him, :hugfriend.

Good luck with everything.

Zaini.
^*^Xaini^*^

 

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