Ferriprox-exjade combination therapy

Well friends,

the New Year has come and it's time to contemplate my steps to enter ferriprox-exjade combination therapy. Not that I am that comfortable but I think I'll give it a try.My last fe count was 133, but I have complied a lot since(in order to bring it under 100 and then start on fe-exjade), so I have reasons to believe it's under 100 now. I'll get another count on 20.1 and see.
I'm thinking, however, to start it. I talked to some guys in my Unit and there was a thal among them, who started it since August (ferritin 800) and his fe is now 200.No side effects.
This is what I fear the most and makes me reluctant:the two chelation drugs interacting with each other. But I will overcome my reluctance and try it.It is worth the try.

Lena.

Lena,
Best of Luck for the new combination and everything ....

Best Regards
Take care
Umair

Thanks, Umair, you too.

Good luck Lena i really hope this combination will work for you and will open doors to others who wanna try it.

Zaini.

Good Luck!!! 

Lena,

First of all I am so proud of you for taking such initiative and charge of your own care.  Secondly, I am so glad to hear that your ferritin levels are in the normal range - after hearing about you I have been pursuing these levels for my son as well.  Thirdly, best of luck with the combination.  I think that because your levels are so low, you will need only small levels of each drug to maintain very low iron levels.  Each drug will provide you with different methods of protection and work in conjunction with each other. 

Best of luck,

Love,

Sharmin

Thank you Dori, thank you Zaini.

Sharmin,

- after hearing about you I have been pursuing these levels for my son as well. 

Thank you. This is enough reason for me to post in this site, because that's what this site is all about: info and support.

Lena.

Lena, best of luck..........

Abbas

Thank you, Abbas. All the best for Najaf, too. She is such a sweet little angel...


Lena.

Tomorrow is the big day!
I start with ferriprox-exjade combination therapy. I am a little worried  whether exjade will launch o.k with me, but I try to be optimistic and keep in mind that this may be a chance to get rid of desferal for good.
(which may be the case anyway because due to my low ferritin desferal seems to start being toxic in me, causing heart palpitation when administered.) So, if exjade does not work in the end,it is possible that I will stick to ferriprox alone.

Wish me luck! (Isn't that what Zaini had said when Zainab started on exjade, too?)

Lena.

Good luck Lena. I'm sure it will be nice to get a break from needles.

Good luck Lena i am sure this will be a big break through not only for you but all those people who are tired of using needles and want to switch to combination of oral chelators .

Zaini.

best of Luck lena...I hope you can say bye bye to desferal. with low dose of Exjde, it does not have much side effect. so, hope you have the same good experience.

Best of luck Lena.

Thank you, Andy. Thank you Zaini, Bostonian_04 and Canadian_Family.
I am starting with 10 Ferrirprox pills daily - 20mg of Exjade and work on it further.We'll see.

Thank you all for your encouragement.

Lena.