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me and my issues

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Offline Lena

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Re: me and my issues
« Reply #15 on: August 23, 2009, 04:39:42 AM »
I agree with Andy. I delute 5 vials of desferal (2500) in 30 ml water and take it in 11 hours.

Lena.
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Offline nice friend

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Re: me and my issues
« Reply #16 on: August 23, 2009, 01:22:33 PM »
Ayesha,
sorry i m replying in hurry so cant read all the posts .. i will read and reply in detail later .. i just wana say that one of my friend experienced the vomiting prob with ferriprox and he asked me wat to do. .. i told him not to discontinue ferriprox and keep taking it , this prob will resolve soon when ur stomach will get used to digest this medicine ( i said this bcoze i had the same and after [bgcolor=#ffffff]1-2[/bgcolor] months this prob vanished ) he did wat i said to him and its 10 month since he is taking ferriprox and he never experienced this prob again .. hope this will help you ...

Bet Regards
Umair

sorry  it was 1-2 months .. and last time i made a mistake  21-2 months .. so now i have corrected this  :grin ..
« Last Edit: August 23, 2009, 05:19:53 PM by nice friend »
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
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Offline Manal

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Re: me and my issues
« Reply #17 on: August 23, 2009, 03:33:01 PM »
Thanks Umair for this helpful tip :wink :wink

manal
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Offline Sharmin

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Re: me and my issues
« Reply #18 on: August 23, 2009, 03:40:53 PM »
Ayesha,

I hope that the problem will resolve for you very soon.  All the best in getting your iron levels down,

Sharmin
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Sharmin
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Offline nice friend

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Re: me and my issues
« Reply #19 on: August 23, 2009, 05:41:27 PM »
Hi Again Ayesha :
As Lena has said :
Quote
I delute 5 vials of desferal (2500) in 30 ml water and take it in 11 hours
i want to add  that  " at least 11 hours " ...
i alwayas been on 24 hour chelation plan when i was 2 vial a day plan and as well o 5 vials a day  .. i never been on less than that ... i think i think increasing the time will also help improving chelation and also itching and allergy probleme .... when ever i try to finish my desferal quickly (in thal center )  and turn my drip fast i feel the itchiness as well that mean's more DFO in less time = allergy ... i always feelin itchiness in my arm near elbow when i do this .... so , 5ml water for 500mg deesferal is the best ... plz check this how i do make that possible to replace empty syringe to filled one to take 5 vials a day in 25ml water ..
http://www.thalassemiapatientsandfriends.com/index.php?topic=132.msg20528#msg20528

best regards
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
*

Offline Ayesha

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Re: me and my issues
« Reply #20 on: August 23, 2009, 06:34:49 PM »
alright thanks alot guys for replying, I have started with 5 ml for 500gram desferal, tomorrow i will contact my hematologist and ask for ferriprox.
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-Ayesha
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