These are the side effects of bone marrow transplant from my point of view....
I)FOR THE CHILD
A) Physical
1)Effects of chemotherapy and medication during the transplant process
2)Constraints of confinement
3)Change of routine,habits,appetite,diet,appearance
B)Mental
1)Confinement
2)Isolation
3)Loss of privacy due to dependance
4)Irritation
5)Frustration
II)FOR THE PARENTS
A)Physical
1)Child care in isolation
2)Health changes due to that
3)Care of self in the time of physical and mental stress to ensure best care and environment for the child
B)Mental
1)Seeing child in pain
2)Being prepared to see any and everything
3)Anxiety post transplant till a decisive result is in
4)Comparison with the other patients in the ward
5)Emotional reaction to each happening and event
6)Effect on interpersonal relationships
C)Others
1)Financial strain
2)Away from work and other family during the phase of hospitalisation
3)Changes in life once the child is home for a period of 6 months to 1 year
This is what I felt and did not really come across much when I was trying to see things online before...They only focus on the medical aspects of it all....it is indeed so much more than just that....
Some more thoughts from the time I was in the hospital later.....
Madhavi