Dear members
My name is Manal and i am from Egypt. I am a mother of a 4 years old child who was diagnoised from two weeks to have thalassemia intermedia. It was by coincidence when we made him a full blood picture. We found his HB to be 6.4 , his MCV 55, his A2 HB was 6.9% and his F HB was 11.5%. His ferritin level is 71 , his spleen is a little bit enlarged( the standard deviation in his age is 8.6 and my son is 11), his heart beats very fast but is completly normal . My son is a very very active child, sometimes he is pale and sometimes his urine is dark yellow. The doctor postponed blood transfusion ( as she said he is very active) and she gave him L-Carnitine drops, multivitamin without iron and Vitamin C, folic acid and calcium with Vitamin D and B12. She said that after one month we will make another blood analysis. At the same time my husband, my daughter and me are doing the HLA test to see the probability of transplant. Dear members to you know anything in food that can make the HB level better other than wheat grass. I want to help him to increase his HB without transfusions and at the same time i am very much afraid from bone deformations.
I have another question which is that i am afraid that my son will not take all his essential nutrients because i started to stop giving him all the food enriched with iron and at the same time give him tea, so does this affect his growth and his in take of minerals and vitamins needed for him to grow.
Also is ice tea is the same as the hot tea and what if we added milk , does it lose its ability to prevent iron absorption?
Sorry for too much questions, but we were a very peaceful family, the biggest disease we had was common cold and suddenly i was faced with thalassaemia. I am so shocked , confused and depressed.
Thanks in advance
Manal