Difference

Best of luck dear Najaf  .

Zaini.

hi,
an update on Najaf,,,,,
she has been going to school last week with great enthuism.....
her Hb is 12.5....hmmmm
and her SF is 507 which was a month ago 5300.....
and now she has been advised asunra from her doctor........
her electropheresis has also been done, i will update u soon

Abbas

Abbas,

I am happy she is enjoying her school.

Concerning the ferritin reading, no doubt that there was a wrong test because no way she can have this drop in one month and most probably she is in the 500 range since she is recently transfused as i suppose.

But since she will be starting Asunra (on 500 level of ferritin), please moniter her ferritin so it won't drop than the normal range. Also moniter her liver and kidney functions every month

Good luck and keep updating
manal

Thats a really great news when was last she got transfused? Her hb is pretty good :thmbsup .

Zaini.

Abbas,
gr8 news .. best of luck , and many many best regards to lil Najaf ..........

Thanks Umair....

Zaini sis, she was last transfused on almost 2nd week of february........i think its good enough!!!!

here is the CBC of Najaf...

CBC

Hb                     12.5                 11---14
haemotocrit         39                   34--40
RBC                    5                     3.9--5.3
MCV                   82.6                 75--87
MCH                   24                    24--30
MCHC                 30                    31--37
WBC                  11.8                  5--15

Neutrophils             57.1%            25--45%
lymphocytes           36.1%            40--60%
eosinophlis              1.5%              1--6%
monocytes              4.4%              4--8%
basophils                 0.9%              0-1%

platelets                  234                50--400

here is the Electropheresis:

Hb                     11.8                    11---14
haemotocrit         41.1                   34--40
RBC                    4.91                    3.9--5.3
MCV                   83.8                    75--87
MCH                   24.1                    24--30
MCHC                 28.8                    31--37

HbF                   100%
SF                     507.3 ng/ml

Najaf is taking Exjade 29mg/kg/day.
Comments are awaited

Abbas

Abbas,

Things are looking much better these days for Najaf. The Hb is staying in a good range and her ferritin is low. I would remind you to closely monitor her ferritin level, as the dose of Exjade may need to be reduced if her ferritin drops much lower, since she is not transfusing regularly and new iron is not being regularly introduced into her body.

I am pleased with her progress these past two months. This is quite encouraging.

Andy,

thanks for your appreciation and encouragement, we will have a look at SF...

Abbas