high ferritin level

zs,

I fully agree with Andy, the only thing I would correct in your chelation plan is the "12ml" water you use to dilude your desferal. I think it is too low. Why don't you increase it to 20ml of water?
 I also take 5 vials of desferal per time but dilude it in 30ml of water.It makes it  easier to absorb.

Lena.

hi
I use 5 vial with 12 ml watter coz my syringe pump MS18 (graseby) dosnt accept more than 12 ml with syring 10 and if use syringe 20 the rate of infusion will be more than rate that must be so I preaper 5 vial with 15 ml watter

hi lene

how many time should take u r infusion pump for 30 ml .

zs,
i agre to Lena and Andy .. u r using much less water to dilute 5 vials of desferal ..  i have been on 5 desferals a day .. i used to take 25ml water to dilute 5 vials of desferal ...  i have the almost same kind of pump ,, mine is MEids's Infusa-T , that is also support to only upto 10ml syringe ...  but , the method i used to use 25ml water for 5 vials was to make 2 desferals in 10ml  when that finish's then replace the empty sringe with 10ml filled syringe of desferal and when that get to finish then replace that empty syringe with a 5ml filled syringe .. make sure to not get the air in ..  i posted the procedure how i used to replce syringes , in another thread somewhere , i willl try to find that and share that to you ASAP .....

Best Regards
Umair

hi umair
it take alot of time to finish 25 ml so maybe I reduse 5 vial to 4 to solve that its better way than use pump for longg time

zs,

I do not think 4 vials is a good idea -- it is too low a dosage, you will be pricked for nothing.
Can't you put the desired time to your pump? 8 or 10 or 12 hours? The rule for the pump  is every vial to be diluded to 2,5 ml water, so 5 vials goes to 12.5 ml water. Technically it is o.k to use 12 ml water but I think it is too low. Anyway, I think it is preferable  than lowering the vials to 4.


Rehman,

I have arranged the 30ml to last for 10 hours.

Lena.

zs,
i agree to wat Lena has said that it wouldn't be a good idea to reduce desferal dose .... bcoze desferal dose is subject to your body weight and your body is subject to blood need and blood need = iron  you're getting ....  desferal and blood need is subject to your body weight .. so, if you're planing to cut down desferal dose then u must cut down the blood transfusion ( or blood volume you transfuese with ) which isn't possible ( to cut the blood transfusion ) so dont cut desferal as well ..

( Andy and Lena , please correct me if i m wrong at any pint of this post ... )

Regards
Umair

Dear Lena

thanks for reply cane you send me you are complete procedure of diluting  desferal and you are pump speed timings.
becouse im using 2.5G desferal with 20 ml of water in 20ml syringe butt that take a 17 hours butt i want that is finish in  in 12 0r 14 hour.
 cane you send me a good opinion .  i have infusa T pump

Rehman,

when you say 2.5G you mean 5 vials of desferal, right?
It is o.k to dilute 5 vials in 20ml water, but I do not know the brand of your infusion pump to give you instructions. You can make it to last 10-11 hours.

Lena.

Dear lena

i have Infusa T pump 

Rehman,

I do not know this kind of pump, how it works. That's what I meant...whether you can adjust the time or not.

Lena.

This pump can be seen at http://www.medis.it/t.asp

I don't know enough to comment, so please advise.

Thank you, Andy.

Rehman,

As I can see your pump has adjustments on it, so you can put the button accordingly.
A full syringe of 19-20 ml  measures 60mm, so if you want the pump to finish in 10 hours you must divide the 60mm/10hours and put the time adjustment button to 6. If you want it to finish in 12 hours, put the button to 5 and so on. I think 10-12 hours is o.k when you have a syringe of 20ml. It is enough. But if you prefer it otherwise, each time divide the 60mm with the desired time and put the button to that number.
I hope my instructins are clear.

Lena.

Hey,
I have been pretty ill two weeks ago. I've had a blood transfusion last thursday. My ferritin was dropped to 400 and my hgb was dropped to 7.7 Only one bag was given. My next blood transfusion is next week thursday late morning. In the evening I got an exam and I moving blood transfusion forward is not an option and postpone it to the other week also not. So, for the first time in my life taniking up and an exam will be on one day. I will get also one bag that time. I wonder what my hgb will be by then. I know, 7.7gl/dl is a shocking mark. I was suprised myself too.

Dori
sorry for the messy message

Hi  Zaini,
        how  are  u?I  want  to  ask  Thumbtack  style  needles  r  available  in  Aga  khan  hospital?I  have  asked  every  where  in   surgical  markets  but  these  r  not  available.is  it  possible   to  get  through  shipment   so  what  would  the  procedure?
Komal