high ferritin level

Good Luck Komal! We are here for support. So you aren't alone in this fight.

Good luck Komal 

I am happy you are starting IV desferal,that will help for sure .

Zaini.

Thanks   all  of  you  how  sincerely  you  people  encourages  me   like  family  members
I  always  need   your  worthy  advices.
Komal

Hi Komal,

I didn't participate in the discussion but certainly was reading regularly and quiet concerned with your ferritin level. There is no stopping when you have the will, the group believes you have the will, so keep fighting. Please keep us updated.

Hi everyone,
       Since   last  night    am  on  IV  desferal  chelation,I  put  5  desferal  in normal  saline.
after  1  hour  I  took  250mg   Vit  C  tablet,I  would  continue  it  24 hours.
One  thing  I  want  to  ask  along  with  desferal  can  I  take  my  other  medicines  like  Vit  D  calcium  etc???
Andy  please  reply.
Komal

Komal,

I'm happy to hear you're taking IV desferal. It will surely help.
It is safe to take supplements while chelating.

What wonderful news, Komal!
You'll see you have made the right decision.

I agree with Andy, it is safe to take any other medication while chelating.

Lena.

after  1  hour  I  took  250mg   Vit  C  tablet

Andy,
wat do usay abt that ( Vit-C ) ??  i think she dont need that at this stage when her S.Fe is high .. 

Komal,
S.fe show's the iron in blood stream , and your S.fe is high  ... desferal bind's iron from blood stream .. vit-c release's the iron from organs to blood , thats why doctors advice's vit-c soon after chelation started with desferal ... [bgcolor=#ffff00]ur S.fe level is high so (as far as i know) u dont need vit-c to release more iron from organs to blood stream .. i think it wud't b good for u at this stage ...[/bgcolor]

please read these posts :
http://www.thalassemiapatientsandfriends.com/index.php?topic=2042.msg26732#msg26732
http://www.thalassemiapatientsandfriends.com/index.php?topic=2042.msg23453#msg23453

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Quote from http://www.rxlist.com/desferal-drug.htm regarding Vit-C with desferal

sad that i find it out after i i've been taking Vit-C 250mg since my fe level came 9000

Note : all wat i m saying is my personal opinion and nothing more than that , its my view  you may agree or disagree to it ...

ps : ( i wanted to write the S.fe level instead of writing "high" here but i dont know why i canceled to mention that and deleted that from everywhere i mentioned that in this post, once after writing.)


Best Regards
Take Care
Umair

I think Umair is right--not to take vit c in this high level. Let's hear what Andy says, too.

As to not mentioning the fe level, well, Umair you are so discreet and sensitive!

Lena.

Lena,
actuly , i m trying to be carefull when posting, bcoze i think that i weren't been careful in past and i think that me n others  have paid for that ....   ... that is the reason why m posting only when i feel that there's need of my post .... ....

Umair.

Yes i agree with Umair too but i do remember Andy saying that a max dose of 250mg will be okay, but let see if this applies on high ferritin

manal

Komal,

The others have brought up the point about vitamin C. Vitamin C does increase the amount of iron chelated by desferal but there are some precautions. The maximum amount varies depending on which source you consult, but the highest amount of vitamin C that can be safely prescribed for thals using desferal is 200-250 mg daily, in split doses. You should slit your dose into two doses daily. However, there is another very important precaution, and this will be relevant depending on the current condition of your heart.

http://www.drugs.com/pro/desferal.html

In patients with severe chronic iron overload, impairment of cardiac function has been reported following concomitant treatment with Desferal and high doses of vitamin C (more than 500 mg daily in adults). The cardiac dysfunction was reversible when vitamin C was discontinued. The following precautions should be taken when vitamin C and Desferal are to be used concomitantly:

    * Vitamin C supplements should not be given to patients with cardiac failure.
    * Start supplemental vitamin C only after an initial month of regular treatment with Desferal.
    * Give vitamin C only if the patient is receiving Desferal regularly, ideally soon after setting up the infusion pump.
    * Do not exceed a daily vitamin C dose of 200 mg in adults, given in divided doses.
    * Clinical monitoring of cardiac function is advisable during such combined therapy.

Has an echocardiogram test showed any impairment in your heart function? If it has, you should minimize any vitamin C to what you get from your diet, until your heart shows improvement. If your heart has shown normal function, it will be safe to split your vitamin C dose into two and take it twice daily. Do NOT take more than 250 mg daily.

Hi  everybody,
            Sorry  for  late  reply,my  computer  was  not  working.I  got  desferal  whole  week  over  24  hours.Am  lil  worried  coz  i  toke   250 mg  Vit  C  tablet  along  with  desferal,without  asking  my  doctor.I  did  not  split  the dosage.
From   monday  am  going  to  start  Asunra   again.
Komal 

Komal,

Don't worry about the vitamin C. If you didn't notice anything unusual, like irregular heartbeat or excessive tiredness, there is no concern. I hope your next ferritin check shows some improvement.

Hi,
     Andy  I  did  not  feel  anything  unusual, so  next  time  should  i  take  Vit  C??This  week  I  will  take  Asunra  Next  week  again  I  will  go  for  IV desferal.
Komal