high ferritin level

Good for you, Komal. You will surely see a drop in your ferritin level after what you are doing.
I am glad that you decided to take action.

Lena.

Komal,

I think you should divide the dose into two doses next time you take desferal.

Andy,


this is something that has puzzled me. You see, for years on I have been taking the vit.C of 250 in one and only dose, a little before starting the pump. Since I have read in this site that the dosage should be split in half, I try to get half in the morning and half in the evening. That means that less is taken when having desferal and this consequently means what? that less iron gets in the bloodstream to be thrown out by desferal? I don't know....
Another thing is that doctors say that vit.C should be taken together with desferal.

Lena.

Lena,

You're right. This needs some clarification. First, in general, if you are taking desferal for longer than 12 hours at a time, which I assume is the case when taking it IV, I suggest splitting the dose into two because vitamin C washes out of the body fairly quickly, so to maximize the effect of the vitamin C, take it in two equal dose (not to exceed 250 mg daily) while taking the desferal. In this specific case I am concerned about the possibility of high heart iron, so splitting the dose will minimize the potential for releasing too much iron into the heart at once.

For someone using desferal for a routine period of around 12 hours, the C should be taken in one dose at the beginning of the desferal administration.

Everything is clear now.
Thank you, Andy.

Lena.

Thanks  Andy  and  Lena
                Next  time  I  will  split  the  Vit  c  dosage.In coming  days  I  will  go   for  desferal.
Komal

Best of luck Komal

manal

Thanks  Manal
last  night  I  went  hospital  to  maintain  IV  again  i started  chelation.This  time  I  did  not  use  vit  C.
KOMAL 

Well done, Komal. It may seem difficult to do IV again and again, but it will show good results. Keep that in mind when you get bored and tired!
As for vit c, that's o.k not to take it as your fe level is high.

Take care,
Lena.

Hi,
  Andy  most  of  time  I  have  blue  colour   spots  on  my  body  they  appears  and  then  vanish  after  2  or 3  days.Today   I  saw  it  on  my  arm  its  somehow  big  painful  too.But  I  never   have  nasal  or  gum  bleeding.what  I  do  for  this??
Komal

Komal,

Are the blue spots bruises?

Yes   they  look  like  bruises.Is  it   due  low  platelet  count?
Komal

Komal,

Do you have any history of low platelet counts?

I know this issue has been going back and forth here and I have been reluctant to say don't take vitamin C, and instead suggested splitting it into two doses and I'm going to say that again. Continue with your vitamin C daily. Take 100-125 mg two times daily. It is not a high dose and no study ever showed these low doses to pose any danger to thals. The easiest way to keep from bruising is to make sure you are regularly getting vitamin C. The vast majority of thals are deficient in vitamin C but doctors have been hesitant to recommend it because studies of higher doses of C have led to reduced heart function in thals with significant iron load, but the reaction has been to overreact, depriving thals of the single most important food based nutrient. No doctor can explain to you how you can be healthy without vitamin C, because it is absolutely essential to good health.

No thal should be concerned about taking low doses of vitamin C daily. There is not a single bit of evidence that this is harmful in low doses. Komal, please start taking vitamin C daily and let us know if you get less bruising.

Hi Andy,
        yes  mostly  my  platelet  count  remain  low,I  start   taking  Vit C  as  per  your  advise.Hoping   this  problem  will  resolve  soon.
Komal

Hi  Andy
   Since  2  days  I  am on  desferal  I  want  to  know  should  i  completely   rely  on  desferal  or  combi  with  Asunra???In  case  of   combination  how  many  days  use   desferal  in  a  month?
Other  problem  is  that  my  weight  does  not  increase  it  is  just  32kg  since  4  years.   how  to  gain  weight  till  35kg?
Komal