high ferritin level

Rehman,

 Try 30 ml water  at least, for up to 6 vials of desferal. Also try 10 hours or even 11.
I hope this works.

Lena.

Hi  Andy,
         I   am  on  Iv  desferal  these  days,its  second  time  I  have  abdominal   pain  its  mostly  occur  after  5 or  6  hours  of  chelation   mainly  after  having  meal.Before   this   I  have   same problem  but  not  after  every meal  as  happening  now.Am  using   6  vials  of  desferal.
Komal     
 

Hi Komal,

How much water are you using for 6 vials of desferal and how many hours are you taking it? You may need to dilute the desferal with more water to reduce the pain.

Andy
    I  put  6  vials  in 350 ml  Plasaline (0.9 % sodium chloride)  and  I   take  for  22  to  24  hours.
komal 

Dear Friends

I m patient of major thalasssemia  if u don’t mind I m asking some about some problems
   
Friends  my iron level is 5530 ng/ml  and I was using exjade tablets 20000mg per day from 16

months  my weight is 56kg and my HCV is positive my ALT(SGPT) is 400 U/l

My doctor was advise me about Desferal and Ferriprox combination he says leave exjad and start this combination .
I was start my therapy butt my subcutaneous sites  was swelling with deferral.

Before 2 year my subcutaneous therapy good is butt now i have very pain and very bad swelling the site is become red rashes .
Because my skin is very  thick and fat I m using thalaset 10mm butt that is not working

Cane give me some advise about my subcutaneous problem.

Because I m very worry for my iron   

Rehman lower ur desferal concentration and increase ur pump timings too. 1g for 10hours.. swelling and reddish skin is always what i experience..infact that kind of itching in reddish is wut i like    i use to play with it..gives me bit of joy..and always swell my area whether abdomen or arm...so get used to it buddy..it shudnt b a problem

waheed Brother

i was try 1g  butt my skin is very thick.
 radish and pain is again im very upset for my iron

thank you Lena  for Reply

i was try u r way butt that time is again reddish and pain

because my skin is very thick.

Komal,

Do you mean 35 ml of water? 350 is very much too high.

Dear Friends

i need 27G 12mm needle for my subcotenious because my skin very thick  .

i was try thalaset 10mm butt that is not working .

cane you tell me about 12mm needle .where cane i buy and who is seller

Dear Friends

i need 27G 12mm needle for my subcotenious because my skin very thick  .

i was try thalaset 10mm butt that is not working .

cane you tell me about 12mm needle .where cane i buy and who is seller

sorry for ignorance rehman .but what does that thick means?

Dear buddies

 finally after diluting desferal in more water my problems are getting better

thanks Friends

Dear buddies

 finally after diluting desferal in more water my problems are getting better

thanks Friends

hasta la vista baby !!! 

thanks taimore

Taimore :S .. hey Rehman who is he ?? lolzzz 

Hi  Andy,
        Hope    you  will  b  fine.My  blood  test  shows  MP   positive  still  i  don't  have  fever  except  slight  throat  pain,should  i  go  for  medicine?test  done  on  28th  April.
Is  there any  harm  to  use  desferal?
Komal