newie from sydney

Dear Vic and Sydney Girl, I too am from Sydney and have a nearly 1 year old who is thal intermedia. What hospital do you guys go to and is there any haemotologist who you know is excellent??

Hi,welcome to the site,
i go to prince of wales hosp at randwick and under dr lindeman.where do you go?
im a 30 year old thal major patient,lovely to meet you

I am 30 too but my 1 year old daughter has Thal Intermedia, she is currently going to Westmead Hospital. How long has it been since you have been diagnosed with Thal Major?? Got any tips about good doctors who know lots about it??

 katia's Mummy,i was diagnosed with thal major from near birth as i have older siblings with it also.

When I don't have anything to contribute, I hug away..  So here you are..

 

katia's mummy, my son is 7 is transfused at westmead childrens hospital under dr teo.  who is ur doc there?  we probably walk past each other. 

Hi, happy new year!!
I am under dr day. Got my next appointment in Feb. How is your little one going?? Katia is going really well... haven't had her transfused yet but she seems to be a happy active little toddler and loves her food.

I was diagnosed with beta thal minor with major status in the mid 70's.  At that time they told me that what I had was basically the same as sickle cell anemia, but the nationality origins were different.  I know that your sons situation sounds serious, but just want to encourage you not to believe this disorder/disease is in control.  I am 49 and still alive and happy.
Blessings to you and your family,
OldThalGal

very cute child vic ... my nephew looks like him .. im missing my nephew to much and that multiplied when i saw vic's pic.