Beta thal minor from the Netherlands

Hi all, 

I will introduce myself, totally forgotten 
I am a 36 year old woman from the Netherlands with beta thal minor. I got this gene from my mother, who was born in Indonesia. My 5 year old son also has thal minor. Most of my family members are minors, but a lot without any complaints. Only 1 aunt and myself have low Hb levels and I have arthritis in my knees. My aunt suffered also with joint-pains, but she also has reumatoide arthritis.
My son has a low Hb level as well. Currently I am pregnant with my second child, who will be born in the beginning of octobre.
I work at a general practitionors office and due to my work I also am knowledged with different medications, blood values and a variety of health issues. I advice people every working day about there health and meds.

Since 2004 I am an active member for OSCAR Netherlands, the patiént organization in the Netherlands (www.oscarnederland.nl). In 2011 I will participate as board member for OSCAR.

If you want to know more, feel free to ask. 

Imken,

It is very interesting and encouraging that a thal minor is accepted as part of OSCAR. Most doctors and thal organizations totally ignore the problems of thal minors, even during pregnancy, so I find this a positive development. I look forward to hearing more from you in regards to what is needed for a healthy pregnancy in thal minors. This is a constant topic in this group and your experience can be very helpful to others.

 

Hi Imken ,
How r u ?? .. , its nice to have u here .. i hope that u will find this forum realy informative ... i hope you'll find here all the answer of ur concerns and questions .. so ,  feel free to ask or share watever u wana know abt or watever u wana share , dont hesitate to post ur questions  ,... i hope to hear more from u in future .. keep posting and take good care of ur self ...

Best Regards
Umair

Hey!! She was also in the delegation who went to Berlin I didn't know most thal minors wouldnt have such places like she has. Strange.

However, since she isn't going to ask a question I will do. Until which hgb level can pregnant woman with thal minor before they should have a blood transfusion?

Dori

Dore,

I am not a doctor,but i think if hb goes below 8,A pregnant thal minor should be transfused.

And Imken, Welcome on the forum .

Zaini.

My question was wrong because I should have typed iron infusion.
Imken is tired but slowely started to have more energy and feeling better - jippy!

hello IMKEN,

I wish you all the best!

 

Thank you all for the warm welcome! Dori helped me à lot when I was feeling so terrible and during my hospitalisation. So thank you Dori. Feeling à bit better now.

 

No thanks