TIF Conference 2011: who is going?

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Offline Sharmin

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Re: TIF Conference 2011: who is going?
« Reply #15 on: December 31, 2010, 06:57:08 PM »
Get well soon Dore. 

Sharmin
Sharmin

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Offline Andy Battaglia

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Re: TIF Conference 2011: who is going?
« Reply #16 on: January 01, 2011, 09:49:00 PM »
Get well soon Dore.  :medicine
Andy

All we are saying is give thals a chance.

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Offline Dori

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Re: TIF Conference 2011: who is going?
« Reply #17 on: January 04, 2011, 01:57:04 PM »
Thank you both. I am on the road of recovery. Today is the first day I do not spend on the couch or in bed. So far so good but I realise I still do not naps. Actually, it is the very first time I fight such infection without antibiotics!!! I have millions of throat infections in my life and always take antibiotics. But not this time. Totally I against the law of my doctor. But yes, I knew it was viral so I decided not to take it.
I only have an annoying cough which usually "wakes up" during the nights....
« Last Edit: January 04, 2011, 03:25:32 PM by Dori »

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Offline Zaini

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Re: TIF Conference 2011: who is going?
« Reply #18 on: January 04, 2011, 04:12:25 PM »
Dore.

For these night coughs,honey and turmeric in warm water helps.

Zaini.
^*^Xaini^*^

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Offline Dori

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Re: TIF Conference 2011: who is going?
« Reply #19 on: January 04, 2011, 04:28:50 PM »
Thank you  :hugfriend btw you havent a facebook account anymore? ( I know it was blocked by Pakistani government and recently unblocked)
But I had to quit Exjade and feel fabolous without it. So you all gonna see me a lot of posting when I restart it. I absolutely have no idee how I will do it this time. I only know my start dosage will be 250mg and I will be ordering a special nice water bottle very soon.


Owh and I am reading the booklet forAntayla now. Wether or not I should do an excursion. I need more friends to come along with me, hahaa :)

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Offline Syaida Lee

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Re: TIF Conference 2011: who is going?
« Reply #20 on: January 05, 2011, 02:13:50 AM »
Hi Dori,
My husband and I are both going. We are already registered. My 4th child Adel (3 1/2 yrs old) is Thal Major.

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Offline Dori

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Re: TIF Conference 2011: who is going?
« Reply #21 on: January 05, 2011, 01:16:32 PM »
It will be nice to meet each other. How's Adel's health? [transfusion scheme/chelation]

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Offline Syaida Lee

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Re: TIF Conference 2011: who is going?
« Reply #22 on: January 06, 2011, 04:18:54 AM »
Thanks for asking. Adel's made vast improvement after chelation (Exjade)/supplements following the members' suggestions in this website. I wonder why & how I got side tracked from managing his thalassemia? Honestly speaking, I only realised that he needed chelation (after approximatly 12 transfusions) when I read about it here. Can you imagine?? That was why I never pushed for chelation. Anyway, he's quite complex with chronic lungs/congenital heart disease all rolled into one. In our previous hospital, when I discussed Exjade, the doctors were reluctant to start due to his history of liver/renal infection after his heart surgeries plus they didn't have much experience dealing with Exjade then. When his spleen got so big, the drs thought he had storage disease (all the tests results were -ve), which we got side tracked again. Anyway, I'm so glad it all boils down just managing his thalassemia. It's been a long and arduous journey. Now, he's almost completely weaned off O2. We took him for an assessment in a special school in Singapore yesterday, which has OT/DT and we are so happy they said they're able to help him. So he will be starting school, which is amazing. Hope to see more of you guys in TIF Conference.   

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Offline ~Sweet*Petite~

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Re: TIF Conference 2011: who is going?
« Reply #23 on: January 09, 2011, 03:20:31 PM »
I hope you fully recover real soon Dori.  :getwell

I'm hoping to come to the Conference with my brother, but I'm hesitating until I know for sure whether there are any cheaper hotels nearby.    :pray

Any information would be much appreciated, especially considering that the Congress does not provide any new information, other than what's on the web/site!!!

Time is running out fast!!!

 :impatient

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Offline Dori

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Re: TIF Conference 2011: who is going?
« Reply #24 on: January 10, 2011, 02:51:13 PM »
I have asked my Turkish friends for help. Somebody out here???? Well, I suggest you also send me a private message 'cause I do easily forget things.

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Offline Nur

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Re: TIF Conference 2011: who is going?
« Reply #25 on: March 13, 2011, 02:00:52 PM »
Dori, you are going to Antalya?..that's wonderful..i am going too and i am also wondering if i should take the excursion...but it is expensive...maybe we should do a little excursion ourself?he..he..

i'd really love to see my friends again...it's these conferences that we get a chance to meet. I wonder who else is going?

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Offline Ayesha

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Re: TIF Conference 2011: who is going?
« Reply #26 on: March 14, 2011, 02:15:30 PM »
Dore, Nur, you guys will be seeing me ;) for the first time I will be attending any international conference!!!

Thank to TIF for approving my application - weeeeeeeeeee =)
-Ayesha

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Offline Maako

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Re: TIF Conference 2011: who is going?
« Reply #27 on: March 15, 2011, 05:20:10 AM »
congratulations ayesha :D , u deserve to go  :stars
Maako

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Offline Dori

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Re: TIF Conference 2011: who is going?
« Reply #28 on: March 19, 2011, 10:26:30 PM »
This is so cool!!!!!  :hugfriend
I wanted to say yes to Nur, but....
First of all I return 18th May to the Netherlands. My friends (3 girls) will be there but a cousin of one of them comes from his home town to Antayla. So I am not sure of it is really possible, but I am wanted to say that we always can do a little sightseeing for usself (is not a word?)
I will post more tomorrow. Clock goes forward tonight... And I am already so tired. I couldnt slept last night from pain afther transfusion. I think I may officially say this is allergy related. A very intense pain in my spine and untill now a kind of liver pain. I would complain last night, but not now. I forbid myself.

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Offline Dori

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Re: TIF Conference 2011: who is going?
« Reply #29 on: March 20, 2011, 08:55:03 AM »
Turns out clock did not went forward. That's next week, but my dad kept telling us this all day long...
I got exams from 28th March to 2 April, but after that I have a week off. Which I cannot believe myself. I will get in touch with everyone from that date to exchange phone numbers and other data. I want to succeed in meeting everyone,
Does someone knows of Gabi from Germany is going and of she's doing alright? I haven't heard from her for months...

I am so happy for you Ayesha. if it's one who deserves it, it is you! <3

 

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