W'salam,
It seems that i'm a carrier (HbE)and my wife too(Beta) on which we didnt even have the slightest idea on it. We only knew it when my wife was carrying Aqeel. To make the story short, we were told that the chances of aqeel getting was 1/4 and when Aqeel was 6 months old, the doctor has confirmed that he is HBe Beta Thallassemic.
You're right actually, detecting it early does not change anything. Well 1 thing for sure its better to know early rather than later ;)
Dont worry too much Ann, Insya'Allah everything will be fine. I understand your worries etc, If you read the tread On Aqeel Latest Update (bacalah kalau ada masa), you will find most of your questions answered by the very best & knowledgeable people around.
Tomorrow Aqeel will be 4 Years old, he's doing fine. He's currently being transfused on monthly basis. If fact dia punya spleen pun bengkak jugak sikit (5cm if i'm not mistaken) . I'm worried about that too actually to be frank, just that his iron level is less than 1k so tak perlu buat iron chelator lagi.
From my experience, when demam hb memang turun,,Aqeel hb dia dalam range 7-8 je all this while, bila transfuse je it shoot up sikit. Dulu doctor suggested to us to transfuse when his hb is lower than 7. NOW, the doctor suggested that we do transfusion when his hb is less than 10.
Nice having you here,
Later
L
Putrajaya/Kajang