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new year new way

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Offline Andy Battaglia

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Re: new year new way
« Reply #15 on: February 05, 2011, 01:09:35 AM »
Congratulations my friend. You have officially reached the safe range for liver iron concentration. The range of 3.2 and below is considered to be the optimal range for transfusing, chelating patients. I am very happy for you, Panos. The change in your health over the past 5 years is remarkable.  :thumbsup
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Andy

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Offline Dori

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Re: new year new way
« Reply #16 on: February 05, 2011, 06:46:56 PM »
Congratulations Panos!!!!!!!!!!!!!!!!!!!!!!!!!!!! You did not forget to celebrate that well? Stuff like that need to be celebrate. Make fun about sometimes fun and you won't forget that fun achievement and feelings!
Warmest wishes, -D
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Offline nice friend

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Re: new year new way
« Reply #17 on: February 12, 2011, 10:11:31 AM »
gr8 panoz..!!!.. u did it man .. i remember  once we met in chat room n at that time u  was so dis-heartedly speaking abt ur life n condition ,, now see the change man ,,  i  know that u'll b surprised to look back and see from where u r coming back in life,,,  u r a true inspiration for others man ... keep it up ,,  :bighug :clap :thumbs :thumbup :hi5boys :hiyaboy   ..

Best Regards
Umair
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Sometimes , God breaks our spirit to save our soul.
Sometimes , He breaks our heart to make us whole.
Sometimes , He sends us pain so we can be stronger.
Sometimes , He sends us failure so we can be humble.
Sometimes , He sends us illness so we can take better care of our selves.
Sometimes , He takes everything away from us so we can learn the value of everything we have.
===========
Umair
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Offline baal

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Re: new year new way
« Reply #18 on: March 17, 2011, 04:32:39 PM »

hi

today i become electrophoreses results...

my Hbf raises from 14 to now 27,8.

i think the HU works....

andy what ur tougths about it?
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Offline Andy Battaglia

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Re: new year new way
« Reply #19 on: March 17, 2011, 06:29:48 PM »
Panos,

This is good news and shows that the drug is working. Has this had any effect on how often you need to transfuse?
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Andy

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Offline Dori

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Re: new year new way
« Reply #20 on: March 20, 2011, 09:10:40 AM »
Congratulations! I wished I would get that feeling again to fight everything. (I do not take any med at the moment, not even E.)
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Offline baal

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Re: new year new way
« Reply #21 on: March 21, 2011, 07:30:24 AM »
here is a pic from the result.

yes andy,i got less transfusions the last time.
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Offline Dori

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Re: new year new way
« Reply #22 on: March 21, 2011, 02:16:18 PM »
Good results, I believe.
The different hgb thing is still different for me since it has nothing to do with pkd.. :$
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Offline Manal

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Re: new year new way
« Reply #23 on: March 26, 2011, 12:08:17 AM »
Good luck Panos and i am sure there will be more to come
manal
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