Wish us luck !!

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Offline Andy Battaglia

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Re: Wish us luck !!
« Reply #495 on: January 04, 2011, 04:11:48 PM »
Zaini,

I would wait until, the ferritin goes below 500 before lowering the dose.
Andy

All we are saying is give thals a chance.

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Offline Zaini

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Re: Wish us luck !!
« Reply #496 on: January 04, 2011, 04:14:00 PM »
Thanks Andy,

I was also thinking the same,just wanted to confirm i was on the right track.

Zaini.
^*^Xaini^*^

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Offline Sharmin

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Re: Wish us luck !!
« Reply #497 on: January 04, 2011, 06:18:22 PM »
Zaini,

That is excellent news, I agree with Andy - keep her on the current dose until her iron levels are below 500 because you want to decrease her iron level to less than 500 and then maintain her at levels below 500.  I am so glad for you and for her:)  Your hard work and patience are paying off:)

Sharmin
Sharmin

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Offline Lena

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Re: Wish us luck !!
« Reply #498 on: January 04, 2011, 06:50:31 PM »


I agree with Andy. Get it down and then consider lowering the dose.

Lena

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Offline Bostonian_04

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Re: Wish us luck !!
« Reply #499 on: January 05, 2011, 07:39:34 PM »
Hi Zaini,

Very happy to hear Little E's ferritin level. You worked really hard to get here. All kudos to you and off course little Z.

Based on our experience, please stay extra vigilant on the liver function tests. possibly test it every month to make sure her liver is not affected by exjade.

Quis custodiet ipsos custodes ? - Plato

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Offline Manal

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Re: Wish us luck !!
« Reply #500 on: January 05, 2011, 09:06:30 PM »
Finally Zaini, :hugfriend congratulation and keep it down :biggrin

manal

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Offline Zaini

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Re: Wish us luck !!
« Reply #501 on: January 06, 2011, 12:00:31 PM »
Thank you everyone, :hugfriend

Sharmin,Lena,Bostonian,Manal,  :hugfriend

We are keeping her SGPT in check,we get it checked every time she goes for transfusion,on her last transfusion it was 22, Do we need to do LFT too?

Thanks for all your support.

Zaini.
^*^Xaini^*^

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Offline Dori

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Re: Wish us luck !!
« Reply #502 on: January 11, 2011, 08:12:30 AM »
Yes, little Z and Ziani, keep the therapy going! I believe soon you are in control about little Z's ferritin.
Please tell little Z shes an inspiration for all, atleast for me. Her studies are going well?
(L)

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Offline Zaini

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Re: Wish us luck !!
« Reply #503 on: January 11, 2011, 12:05:42 PM »
Thank you Dore  :hugfriend you are an inspiration for us as well, yes her studies are going pretty good,she has memorized more then half of the Holy Quran,and with that her academic studies are going good as well.

Love,

Zaini.
^*^Xaini^*^

 

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