The Carao Trial - How effective is it & who benefits most etc.

Andy,

my son does not want to use Hydroxyurea (Litaril). He was prescribed the drug 2 years ago and stopped using it. He is in the process of going into a regime of regular transfusions from now on. Would supplements still help?

I will try to get the numbers. What other numbers should be watched?

It appears to me that we have been very ignorant of my son s condition in the past (as long as it worked out with little side effects). People here now so much about about vitamin levels, Hb levels etc.  I feel so guilty to be so ignorant.

Desperate

Hi Kitkat,

Wheatgrass tablets come in varying sizes, but are usually medium to large tabs. An alternative is the wheatgrass supsershots liquid. It's a little pricier than wheatgrass tabs but easy to take. http://www.drwheatgrass.com/

Thanks Andy! I will have to try that. I probably won't be able to swallow the wheatgrass pills, so the supershots might be better.