UPDATE ON LAURYN

HEY GUYS,

WOULD YOU BELIEVE 1/2 HOUR BEFORE HER DR APPT.TODAY THE DRS OFFICE CALLED TO RESCHEDULE FOR NEXT MONDAY BECAUSE WHEN THEY DREW HER BLOOD LAST WEEK,THEY DIDNT GET ENOUGH OF A SAMPLE? AS IF WAITING 2 WEEKS FOR RESULTS WASNT PAINFUL ENOUGH. WHY WOULD HER DR CALL ME THE A.M. OF HER APPT. AND NOT EARLIER? WE HAD TO TAKE THE POOR THING FOR ANOTHER BLOOD DRAW A LITTLE WHILE AGO . FROM WHAT I RECALL, THEY TOOK ABOUT 1CC'S WORTH OF BLOOD FOR TESTING. IS THAT TOO LITTLE AMOUNT? IF 1 CC IS TOO LITTLE, THEN WHY DID HER PEDI. CALL ME AFTER HER NEWBORN SCREENING TO TELL ME SHE HAD THAL MAJOR? I THINK THEY ONLY TOOK VERY LITTLE BLOOD FOR THAT TEST?  IM SO DISSAPOINTED, BECAUSE SOMEONE ROYALLY MESSED UP, WHETHER IT WAS HER HEMO. OR THE LAB. I SHOULDVE BEEN NOTIFIED EARLIER, DONT YA THINK??? NOW I HAVE TO WAIT 5 MORE DAYS TO GET THE RESULTS. THE EMOTIONAL ANGUISH OF BACK/FORTH IS TAKING A TOLL.

 

THANKS FOR LISTENING,

CHRISTINE

WOW! Do the doctors have any idea what anguish they put people through? I think the intital diagnosis is premature considering all things. A premature baby has 100% fetal Hb, and a test of fetal Hb at birth is not conclusive. The doctors should  until they have something definite to say. It does no one any good to give a premature diagnosis.

Please try to relax as hard as that may be and in the meantime enjoy that beautiful baby. 

Oh dear.... That is really annoying! I guess the doctors want to show off their efficiency that "look we are so fast and well aware of things" In reality they don't have the slightest clue that should jump to conclusion. The human body is so complex and unpredictable. You just can't tell for sure by just looking at preliminary tests or observation.

Why do these doctors get away with their ignorance?!?!?

Hi sajid.
Doctors  get away with it because, they were told that they are god by thier professor on thier first day of medical school and they continue to believe so.they also believe that they are in the elite class and they do no wrong.There are very few good doctors left and they are the one which is known to be always, fully booked.

Hi Chrissy

I just read your posts today and I can't beleive the stress you are being put through by some ignorant doctors. 

Try not to worry too much ( I know it is easier said than done). We are all with you and praying for your baby..


  Maako

Dear
     from my expiriance with the hospitals all over the world i found two kind of Dr's one of them you will love them  :hug and they are like angle :noangel and some of them they need  so pls don't make your gudchment on all... i've been in italy for 13 month for bone marrow transplant for my son i found good PpPL and bad PpPL but this formula every where every country..... there is two Dr's am never ever going to forget them Dr.gazieve javid and Dr.paola polchi these two person i wish you meet them to know what i mean ...
                   take it easy
           khalifa

Hello Chrissy!

I am sorry to hear that you are having so much difficulty getting a diagnosis for your baby.  Do try and relax and enjoy her, because if you are stressed she will pick this up.  She looks so gorgeous in that photo you posted!

Unfortunately doctors are only human and cannot know everything.  You are doing the best that you can in obtaining information from as many sources as possible.  Look to your doctor for advice and guidance, but seek as much other information as you can.  I think you will find a lot of help amongst the people in this community.  I hope that you get a speedy answer and I hope that Lauryn brings you much joy, no matter what the answer is!

SalD.