Poirot, thank you for the fresh look.
I've no idea what you guys are talking about. I hav ben given washed blood all my life. I hope it will be standard in every part of the rule too. Weren't Bill Gates and his wife last week in India? I know they do anit malaria things. Time someone goes waving witha thlassemia flag under their nose. Why can't thalassemia be not an issue of chairty? Maybe that is also not smart and do you need to motivate people from within. Well, I let me say that I say nothing.
Welcome, Dore. In the great country that we call Bharat aka India (4th largest economy in the world), getting safe blood still remains THE key issue for most thalassaemics - I shudder when I think of thals in non-metro cities in India. I have been lucky to have had access to good quality blood from the start, thanks initially to the Tata Trusts (India's version of the Gates and Buffet) and then Red Cross - but, it still remains a challenge for most thals in India.
RE: Malaria vs Thalassaemia - I guess it is a question of numbers. It is ironic that Thal will remain an orphan disorder, until enough number of people have the disorder globally, at which point in time you have a health crisis, to make it worthwhile for policy makers to pay attention!
As you can see, I am feeling very grouchy/cynical today.
Cheers
Poirot