info on B-Thalassemia Major treatment in the United States

Hi everyone,
I am new here. 
I am a Thalassemia patient, 28 years old, female, living in Switzerland. I plan to have a scholar visit for my studies in the United States (probably in California) for a duration of 6. Since, my biggest concern is my treatment during the stay in the United States, I would like to get some information about health care system and expenses for Thalassemia patients there. I have B-Thalassemia Major, on monthly transfusion (3 packs every 4 weeks) and Exjade (1750 mg per day).

I would like to know whether or to what extent the treatment expenses of patients, similar to my case, are usually covered by insurance  companies within the United States. If yes, how can I apply for such an insurance? Is it possible to get insurance for only 6 months? Shall I be employed in the US in order to get a health insurance? How much usually does a health insurance cost for my case? And finally, how can I find a medical center and a doctor for the duration of my stay in the US?

I would be very grateful if you could give me those information,
Best regards
Som

Hi Som,

You should contact Eileen at the Cooley's Anemia Foundation. She should be able to tell you what can be done in the US.

Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
(800)522-7222
Fax: 212-279-5999

Patient Services Manager
Eileen Scott
eileen.s@cooleysanemia.org

Thanks for the prompt response and the info! I will contact her.
Best, Som

Hi Som,

I am Srikanth, an Indian. Doctors diagnosed me as a Thalassemia Major Patient at the age of 2 years. Now I am 25 years old. I need blood transfusion once in every 6 weeks and I am taking Asunra 1600mg/day.

I am working for an MNC software company and I may travel to United States next month for an onsite assignmet and the duration of my stay in United States will be from 6 months to 1 year.

If you have already enquired about insurance for Thalassemia Major patients in United States, Kindly let me know the details.

If anyone else who has knowledge about insurance for Thalassemia Major patients in United States, please provide me the details.

Thanks in Advance!!

Best regards,
Srikanth

Hi Srikanth,

For more information about treatment in the US, please contact Eileen Scott at CAF.

Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
(800)522-7222
Fax: 212-279-5999

Patient Services Manager
Eileen Scott
eileen.s@cooleysanemia.org

Hi Andy,

Thanks for your response!!
I will send an email to Eileen.

Best regards,
Srikanth