Hi,
Just read your situation and I really felt that I had to comment.
My brother and I are both Thal patients, my brother is 27 and I am 25.
My mum is a single parent and she brought us both up on her own and done a great job. I admit it must have been very hard and challenging for her but she did her best and never let us feel a lack of anything. My mum was very young when she got married and then got divorced. When we was little she had to take us both on buses to and fro the hospital as she could not drive then. She never made us feel 'not normal', we both led healthy, happy lives. When my mum was pregnant with me she knew I had thal major but it was never a question for her to even consider to have an abortion and I am so grateful to her today, for the life she has given me.
It was nice having an older brother with me in hospital, going through the same things. We use to keep each other company and give each other support when we went to the hospital together. Older brothers do usually look out for their younger sisters but mine and my brothers' bond was extra special. Instead we enjoyed our monthly trips to the children's ward at the hospital, we got to play, have fun and the hospital always took us on trips. We had more fun than any of our friends.
As life goes on, things do go up and down with Thalassaemia, you do have your good days and bad days just like anything else. It's not easy but then what is in life?
Now, my brother is happily married and living with his wife. I have done a BSc Psychology degree and want to pursue a career as a clinical psychologist. I want to make my mum proud and try and repay everything she has done for us, even though it won't be possible. Me and my mum are very close, she is my best friend, and she relies on me for all kinds of support.
Yes, I have got an illness, yes my brother suffers from it as well, yes, my mum gets upset because of it, yes, I don't have the support of a dad but, still everyday I feel truly blessed and thank Allah s.w.t for everything I have got. Truly, I could not ask for more.
I personally feel that having thal has made me a more stronger and mature person, however, everyone is different and deals with it differently.
Life is a test, a test of how you deal with things. My dear friend I hope you have the strength and courage to do the right thing. I hope my story helped, even a little bit.