Thanks Andy for the introduction and the warm welcome, and to everybody for the nice words.
I co-founded Cure Thalassemia with my best friend Dr. Pietro Sodani (who works since 10 years with prof. Lucarelli, the inventor of BMT, and he has done 400 BMT), after having visited thalassemia transfusions centers in India, Pakistan and Bangladesh. I was so touched for what I saw, that I decided to do something about it.
I then realized that there is a lot of excellent information about the treatment, but little about the cure, and this one of the reasons why we decided to create a website with as many accurate information as possible:
http://www.curethalassemia.org/We also have a very detailed FAQ page, and we update it regularly:
http://www.curethalassemia.org/faq/Our focus is 100% on the cure, especially Bone Marrow Transplant (which exists since 30 years), both from matched and unmatched donor.
I commit to answer to all the questions, but please give me time, because whenever I don't know the answer, I must talk to Dr. Sodani and/or Prof. Lucarelli, to find the right answer.
I'm very very happy of this new collaboration and I'll write more about in the Cure Thalassemia blog.
Whoever has questions for me or Dr. Sodani, can contact us through this page:
http://www.curethalassemia.org/contact/This is the beginning of a long journey that I hope we will all do together.