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Will Gene Therapy be the Cure for Thalassemia?

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Offline Sharmin

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #15 on: January 10, 2009, 08:08:09 AM »
Poirot, I will send you a PM with a contact. 

Sharmin
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Sharmin
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Offline Dori

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #16 on: January 26, 2009, 07:46:14 PM »
Thalassemia Gene Therapy Forum Scheduled for Feb. 5

January 12, 2009 -  Memorial-Sloan Kettering Cancer Center will present a forum, "Treating Thalassemia: From Transfusion to Engineered Stem Cells," on February 5, 2009, from 2:00-5:30 p.m.  This symposium is intended for physicians, researchers, patients and patient advocates.

The forum will be divided into two sections.  The first half, from 2:00-3:30, will focus on"Current Therapies for Beta-Thalassemia."  The second half, from 4:00-5:30, will address "The Promise of Stem Cell Engineering."  A pdf of the complete program can be downloaded by clicking here.

The forum will include information on an upcoming US trial of globin gene transfer for thalassemia.

For additional information, please call (212) 639-6190.
http://www.cooleysanemia.org/index.php?option=com_content&view=article&id=83:thalassemia-gene-therapy-forum-scheduled-for-feb-5&catid=1:latest-news
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Offline Andy Battaglia

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #17 on: January 26, 2009, 07:50:05 PM »
I'll be there.
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Andy

All we are saying is give thals a chance.
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Offline Dori

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #18 on: January 26, 2009, 08:01:19 PM »
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Offline baal

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #19 on: January 26, 2009, 10:09:49 PM »
good job andy

we count on u.... :wink
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Offline Manal

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #20 on: January 28, 2009, 01:52:37 AM »
yes, Andy the titles of  the lectures are so interesting, can't wait to seewhat they will say especially doctor Sadaline

manal
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Offline Sharmin

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #21 on: January 28, 2009, 05:31:38 AM »
Andy,

I am so glad to hear that you will be there for sure!

Sharmin
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Offline Sharmin

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #22 on: January 28, 2009, 09:38:36 PM »
As Pat has said, while we wait for gene therapy to become a reality, we all have a job to do. 

Thal patients need to take very very good care of themselves so that they can benefit from the treatment.  Supplements and chelation are the key to wellness for thals.  Low iron levels are essential before any treatment is applied to treating/curing thalassemia. 

We also need to encourage those around us to get their iron levels down, as Umair has demonstrated us it is very possible, so let's encourage people around us to chelate chelate!!

Sharmin
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Sharmin
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Offline Zaini

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #23 on: January 29, 2009, 03:13:15 AM »
 :exactly :agree :yes

Zaini.
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^*^Xaini^*^
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Offline Dori

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #24 on: January 29, 2009, 08:06:21 PM »
Sharmin, I am still not a very brave girl with taking suplements  :blush
But I know that you speak the truth.  :agree
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Offline Sharmin

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #25 on: January 30, 2009, 02:34:53 AM »
Dore, don't worry we are here to support you :)

Andy,  I am very excited about the announcement and the conference next week.  I am even more excited to know that you will be there for us - thank you Andy.

Sharmin
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Sharmin
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Offline Poirot

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Re: Will Gene Therapy be the Cure for Thalassemia?
« Reply #26 on: March 21, 2009, 09:35:23 AM »
Quote from: Sharmin on January 10, 2009, 08:08:09 AM
Poirot, I will send you a PM with a contact. 

Sharmin

I got your PM, Sharmin, and I msged the guy, but got no response whatsoever.

Looks like his funding is tied up.

Cheers
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