Hello fellow Thal minors:) So excited to finally have some sort of support group in relation to this mysterious condition. I have never met anyone else with thalassemia minor or major (except of course my mum who passed it on to me!) so it's nice to know im not alone! I was wondering, does any one else suffer from chronic dehydration?? I have suffered it all my life and have been told it is because my cells aren't strong enough to hold sufficient fluid. It kind of makes sense, seeing that our cells aren't very stable. I have been taking natural sea salt to help the water go into my cells, it is the only thing that seems to hydrate me. Otherwise it just runs straight through me. (I have been tested for every other disease relating to dehydration eg. diabetes, kidney disorders). Anyway its not a very good long term solution, so I guess the other option is to just focus on building cell strength. I am already on Vitamin C, B12, magnesium and occasionally folate. Also fish oil to help decrease blood coagulation.
Any other advice would be appreciated:)