THALS – high risk getting a HCC (Hepatocellular carcinoma)
Dear Friends,
I would like to share my latest experiences and information.
End of August, I had travelled to Hamburg for some special tests (SQUID) to check the iron-overload in my liver and the heart.
The whole tests had not been very delighted, as I had been approached by a very negative comment: you should have given better care to your treatment in your youth.
Even my sister, who joined me for this travel, was offended by the way the doctor was talking about me and replied angry to him.
During the CT, which had been done in addition to the SQUID for the heart check, they told my sister we should re-do another CT in Frankfurt, as they located some spots in the liver, which are looking different and could be tumors. I will not go into details about the emotional reaction of my little sister, etc. – I was convinced that there is nothing and/or only the extra-modular tissue, which I have as well in the lungs.
To cut a long story a short, I did the CT again in Frankfurt and the docs here diagnosed as well tumors in the liver and did a puncture to check it is something malignant or not. The result is shattering: I have a so called HCC (hepatocellular carcinoma) – in total 4 tumors in the size of 4 – 5 cm. L
According to my doctor it is based on the damaged cells, due to hemachromatosis/iron-overload and the liver cirrhoses as a result of same!
In fact she told me THALS patients have high risk to get a HCC.
Therefore I would like to recommend to all of you to do 2 a year a CT to check your liver. My blood results – especially the liver data e.g. GOT, etc. was always within the parameters.
Last Friday the did another puncture in the back to count out metastases to put me on the waitlist for a liver transplantatio!
I have to wait for the results and keep you updated of the out-come.
Wish me luck….
Bye, Panos