In case any one else has this question, I thought I could provide a little bit of info now that we have had some testing completed. I am sure there are vast differences between labs, ins companies, etc. in the US, but our experience was WITH insurance the cost of hemoglobin electrophoresis was less than $200, I thought it would be much more, so that was a pleasant surprise, dna sequencing of course is much more and I think (after looking it up many times) ranges from $1500-2500 for the most common mutations/deletions, I cannot personally confirm this yet, but may add more info later.