Any friends also with alpha-thalassemia minor here?

Hello all!

I wonder if here are some friends also with alpha-thalassemia minor here.

I was diagnosed as a patient of alpha-thalassemia minor --SEA. I don't know what I will confront in my future life. I wonder if anyone here is just the same as me.

I feel lonely.

What's more, I am in my 40 days of pregnancy. I don't want my baby to be a thal. carrier, even though there is only 50% of chance. My god, my life is now a mess. I feel desperate.

I just wanted to wish you and your unborn baby the very best of health! Please don't worry yourself sick, your baby needs you to be as calm and stress-free as possible during this time

Maybe the most important thing for you to do at this time is to inquire on testing for your baby's father to determine whether he is a carrier of any forms of Thalassemia! This information will be very important to your baby's health!!!

I understand your feelings coming into this diagnosis, please read the recommendations that Andy and others have given on this site for Thalassemia in pregnancy, it will give you a great starting place for supplementing folic acid among other suggestions to keep you and baby healthy!

Best wishes,
Sarah

First of all - Welcome to thalpal

There are millions of thalassemia carriers in the world - both Alpha and Beta so there are a lot of minor's. I am not sure of specifically someone on this site but I do recollect some of them who did talk about their Alpha Thalassemia child here, so sure there are some on this site.

Please read the Alpha Thalassemia section on this site : http://www.thalassemiapatientsandfriends.com/index.php/topic,1772.0.html

Thank Sarah!
Thank Narendra!

Fortunatelly, baby's father is not a thal. carrier. Even though I still worry about my baby's health and future. After all he/she is not a NORMAL person.

Is it too crule und unfair to the baby if I stop the pregnancy?

Really upset.

Relax. As I have written in another post, there is no danger. You carry alpha trait, not the disease. Because your husband is not a carrier, your children will either carry trait like you, or be normal. Either way, there would be no reason to end the pregnancy.

Andy, thank you very very much!

Hello bolu
I know your message was a couple years ago
I just found out first of May 2014 that I do have thalassemia minor and  just in the 21was went I got hold of a copy from my diagnostic. That was strange because I was expecting to see my thalassemia coming just from my mother's side but I found out to that I received one gen defective from each of my parents so I have  alpha thalassemia trait - alpha/- alpha.