When my son was adopted from China at age 3 in 2010, his first ferriscan was 17.4 (severe iron overload).
10 months later, after 8 months on 500 mg Exjade, his ferriscan was 4.1 (normal range for transfusion dependent patients)
one year later...(two weeks ago) ferriscan results 2.8 (normal range for a non transfused person!!)
We are meeting Friday to go over other bloodwork results to make a decision about chelation.
I believe we will be stopping Exjade for 6 months, or lowering it to 125 mg for 12 months.
We are ecstatic at the results! Never in a million years would we have ever imagined that we would be in this place right now!
Nicole