My Iron Reports & Further Questions.

Hi everybody and Andy,

Updates: As of August 11, 2012 my ferritin level is 5746. On June 30, my ferritin was 6042, so in total around 296 reduction is seen in the ferritin levels since the last report which I think is very good.

I've been taking 1200 mg Exjade (Asunra) ever since June 30 and now I'm planning to switch over to 1600 again from tomorrow for more better results.

Things I've been following or doing to achieve this:

1. Split dosage, 800 mg in morning and 400 mg in evening. (This point cannot be stressed enough!)
2. Taking 800 morning dosage with Lemon juice (Vitamin C) to enhance chelation effect.
3. Taking Exjade in glass made cup/glass and stirring it with a plastic teaspoon instead of metal one.

Andy, one question, my SGPT is 80 or 81, would that be fine to take 1600 mg with this level? I am taking HepaMerz meanwhile so it doesn't increase my SGPT for a meanwhile.

Finally after years, I feel now my chelation levels are actually STABLE and not fluctuating like anything, I mean, see it, 5982, 6042 and now 5746 otherwise in past in one time I could have 5000 and the very next report claimed 8000, but it's now VERY STABLE!

I think I am on correct path and I hope to achieve good chelation effects and bring my iron levels near to 1500 in an year or so!

Meanwhile I also think that Vitamin C is enhancing or doing its bit to help get the most out of the chelator, so I recommend everyone to take Asunra/Exjade with lemon juice, if possible, and most important, SPLIT THE DOSE!

Thank you.

The SGPT or ALT of 80 is slightly high but Exjade/Asunra is not stopped unless the level is 5 times normal. I suggest continuing to split the dose, stay well hydrated and get your liver function tests done early in the morning if possible, as activity causes the level to increase. An early morning test will give a truer picture of your level. Stay well hydrated.

The SGPT or ALT of 80 is slightly high but Exjade?Asunra is not stopped unless the level is 5 times normal. I suggest continuing to split the dose, stay well hydrated and get your liver function tests done early in the morning if possible, as activity causes the level to increase. An early morning test will give a truer picture of your level. Stay well hydrated.

No Andy, I DID NOT stopped, I just reduced the dosage from 1600 to 1200 around 30 days back but I would be starting to continue 1600 from tomorrow.

And yes, the SGPT and all tests were of early morning fasting (no meals taken, the path comes directly to my house, I wake up and he takes the blood sample), so that is all done just after I am awaken.

I do stay very well hydrated (I've mentioned in many posts how I am a die hard water lover :P).

Cheers,

P.

Just keep monitoring as required. Many patients shows increased LFTs when using Exjade, but usually it is not a problem. Consuming healthy herbs like turmeric (curcumin) and nigella will also help your liver function.

Alright, thank you Andy.

I'll be getting T2 done this week most probably.

Hey guys, I'm back with more updates of mine regarding iron reports.

Updates: 22nd September, 2012: 5354.

And on August 11, 2012, it was 5746.

That means a direct decrease of 392 in 41 days.

Since past 1 and half month, I've switched to Asunra 1600mg instead of 1200 and following aggressive chelation plan (max as possible).

The reports are now actually pretty stable and as well all know, iron reports including mine were mess and fluctuated a lot. But ever since I adopted some strategies, a constant decrease is being seen.

What I've been doing to achieve this:

1. Splitting dosage of Asunra (most important). For example, I take 800 in morning and other 800 in evening to achieve 24 hour chelation goal.
2. In morning, I take Asunra with orange juice (Vitamin C) as the recent research shows Vitmin C helps in removing free iron.

So when I was taking 1200mg/day, my iron decreased around 300 every 41 days (check my main post of my early reports since May) and my assumption was correct. Each 400mg tablet removes around 100 units of iron excluding other iron transfused by blood transfusions (450-500 CC every 21 days) on a time span of 42 days. So when I switched to 1600, it removed around 400 (392), hence my calculation was actually pretty correct. I transfuse 450-500 CC blood every 21 days, if anyone of you may wonder.

So, even if my iron is getting reduced on a scale of 392/41 days, within a year, I would be around 1800-2000 if it works as expected (which it is as of now, at least). Because I take Asunra ever since it's start (May 2008) but it never did a constant decrease like this, hence why I've got my hopes high this time and I really wish I conquer this fight.

Thank you Thalpal, Andy, everyone for making me achieve what I'm achieving today. This is the best chelation plan I could ever have had.

-P.

Pratik - Very glad to hear this chelation plan is working for you. This shows that with a better management and hard work you can achieve excellent results.

So true Narendra.

-P.

Hi Pratik,

It's very good to see reduction in Fe.

Keep Chelating.

Pratik,

Good progress. As it continues to drop and reach lower levels, you will notice that your ferritin will drop more quickly. This is a result of cleaning your organs of iron. As the tissue iron load drops, the ferritin will then release iron to be chelated, as the more dangerous free iron is addressed first.

New report/update. 

Updates: 3rd November, 2012: 4456.

Last report, September 22, 2012: 5354.

That means total decrease of 898 in just 42 days.

So happy, hahaha. :D

-P.

  Good news, Pratik. Keep it up.

Good news, Pratik. Keep it up.

Thanks Andy. 

Corrected date, it's 3rd Nov today and not Oct, hehe.

On a side note, I cannot thank you and Thalpal enough for wonderful split dose guidance, all I'm achieving is because of that. Otherwise, I've never in my life saw this constant decrease of FE.

You were right, once it starts removing, its process speeds up little by little every time.

-P.

Hey Pratik,
Congratulations
Very good to see the lower level of Ferritin dear.
Whats your current dose?
Have u noticed any changes in Weight and Insulin dosage?

Hey Pratik,
Congratulations
Very good to see the lower level of Ferritin dear.
Whats your current dose?
Have u noticed any changes in Weight and Insulin dosage?

Thank you.

No, my weight is 42 kg only, and insulin dosage has slight decrease.

From what I recall from April 2009 experience of summer (4 months before which in January I got diabetes), my ferritin in May touched around 3300 and I had sudden drop of insulin dosage. I didn't needed to take Actrapid (short acting - 3 times a day) but just Lantus (Long acting - taken twice a day), so I was only poking 2 needles, and I was even eating mangoes (very very sweet fruit)!

So I believe when I'll have ferritin somewhere around 3500 or below, there might be a good sign awaiting for me, who knows, if iron has not rusted my pancreas in these 3 years.

And Dharmesh, we both are getting nice decrease, congrats to both of us, and this all due to Thalpal, long live Thalpal.

Oh and my current dosage is 1600 (800 in morning while another 800 in evening, split dosage).

-P.