Congestive heart failure beginning symptoms

Yes, that would be done. But shouldn't I got for some of the PHT tests or you'll decide that on the basis of T2 reports?

-P.

Andy, now that is really scary. Can you tell me some basic blood sample test if possible? Oh, and I read on above link also a phrase doppler echocardiogram, is it Color doppler? If so, I've got it done back in January 2009 end and it was perfectly normal, should I get it done again if it could help it diagnose?

The link also mentions some variables in blood samples may also point out, so what levels or variables it maybe? Tomorrow morning, my blood sample is to be taken for transfusion, so if I know which tests possibly I can get done, I shall know then, speedy reply would be appreciated.

I also want to ask other thals as to around what their heartbeats stay normally?

Dear Pratik,
Let me share with you that inspite of having normal heart function shown by 2D Echocardiography (LVEF 62%) done before going to do MRI for Cardiac and Liver Iron Assessment for Thalassemia Protocol(i.e. T2* MRI), my T2* Score is very poor. Though i was having chest pain at that time the 2D Echo was showing normal heart function.
My one friend faced the similar thing (Echo Normal and MRI Poor) and yes he is having some higher heartbeats.
So, i want to draw your attention that it doesn't matter that your Echo is normal or not you should done T2*MRI.

You should get the T2* test.

 

Yeah Dharmesh, I am about to get T2 done, have sent you a PM regarding details of the center where it gets done as am planning to get it done under a week as transfusion is planned tomorrow.

And Andy, as tomorrow is blood transfusion, today was blood sample test and my Hb is reported as 9.4. It could have been around 10 but I got fever on couple of days so maybe that cut it down.

Also ferritin is to be done this time, that report would come tomorrow evening probably or on Monday, I'll update my ferritin thread once I get the reports.

-P.

Yes Dear Pratik,
Got your PM,
I would be happy if you had called me.
I think that you should go through your doctor or Peditrician under whose your treatment is going on and not directly as you are going first time.
Anyways please find the answer in PM.
Hope that your results will be ok.
By the way HAPPY JANMASHTAMI.

Happy Janmashtami to you as well, Dharmesh.

Oh, and I am and was currently too busy as I was preparing for tomorrow's transfusion, I'll call you later tomorrow or text you first from my mobile so you'll recognize my number. ;)

Dear Pratik,
Let me share with you that inspite of having normal heart function shown by 2D Echocardiography (LVEF 62%) done before going to do MRI for Cardiac and Liver Iron Assessment for Thalassemia Protocol(i.e. T2* MRI), my T2* Score is very poor. Though i was having chest pain at that time the 2D Echo was showing normal heart function.
My one friend faced the similar thing (Echo Normal and MRI Poor) and yes he is having some higher heartbeats.
So, i want to draw your attention that it doesn't matter that your Echo is normal or not you should done T2*MRI.

My latest 2D Eecho Cardiography report
LVEF reduced to 54% from 62%  
there is very mild pain in heart
i think there is more iron overload in heart inspite of chelation

Dharmesh, remind me what your current chelation program is.

Hi,
I am on 50mg/kg (30mg/kg morning & 20/kg mg evening) defrijet (deferasirox) with split dosage &

Desferal 20mg/kg (60+ vials per month) S.C. through pump for 12 hours

BT (275 ml*4 units volume) approx 1100-1200 ml L-Rcc (4 units every month)

I do feel that iron is getting reduced but not from heart

Dharmesh,

Are you planning a T2* test? You are chelating well and I think your perseverance will pay off over time. It takes 17 months to remove half the iron load from the heart. Heart and liver scans are the only way you can measure your progress. It may be slow, but you began with a significant iron load. I would suggest a T2*. You need to know what your current status is and if any other intervention is required. If you do not have swollen ankles and feet, you are most likely safe, but you really should get the heart scan.

It's been an year for me too and I have never got a T2* done in my life. Last year planning went into vague too.

I'm really planning to get it done this time at least by August end or so.

I kinda like to travel very less, so even if it's just 120 km away, I feel like it's very far. Hopefully, I'll to get it done this time!

I found after my Vitamin D level rose (and also with incorporating use of CoQ10) heart takes a little less stress. Earlier when I used to climb up stairs, I could feel some kinda load on to my left chest side, as if a kg weighted bag is attached or so, not now.

Also I'm getting hypoglycemia since past 2 days continously in middle of the night around 5 AM, so I really now need to slightly adjust my dosage again (I'm not even taking Cinnamon!). Hopefully when my iron comes extremely down, I'll be able to fully curb this thing which does not let me rise from my past. Every day I somehow think about my good old days before Osteoporosis and diabetes. What if it was not there, what if? - Getting bombarded with these questions daily in the mind itself is a big challenge.

Anyway Dharmesh, keep chelating and keep fighting. We'll win this fight!

-P.

Nope.
Though it is the time for a fresh T2*Scan, but my Fe 5350 is suggesting iron overload. I think that i will go for scan when my Ferritin will be in three digits.

Ya it takes 17 months to remove half iron from heart but from whom splenectomised or non splenectomised? As the requirement of bt of splenectomised is low.

& i really think that 4 units of bt is a burden and true reason of iron overload. Recently , i completed 20 yrs of desferal therapy. (19 yrs alone desferal and 1 yr with deferasirox) and 4 more yrs of alone deferasirox. (total 24 yrs of chelation   

There is NO Swollen Ankles & Feet but fingers were swollen before 2 days in the morning when i wake up and it got disappeared in half n hour. & my Cardio is not worried with LVEF 54% , he said it is ok.

@ P
i also got hypo twice , @ 8.30PM on sunday & monday and also at 5.30AM today
I dont know what is cinamon.

My HbA1c is 7.2 (avg 193ng/ml, 3 months)

Rest all the tests .. it is a big list , pre operative, is normal ,,, ooh god thanks u very much

Nope.
Though it is the time for a fresh T2*Scan, but my Fe 5350 is suggesting iron overload. I think that i will go for scan when my Ferritin will be in three digits.

Ya it takes 17 months to remove half iron from heart but from whom splenectomised or non splenectomised? As the requirement of bt of splenectomised is low.

& i really think that 4 units of bt is a burden and true reason of iron overload. Recently , i completed 20 yrs of desferal therapy. (19 yrs alone desferal and 1 yr with deferasirox) and 4 more yrs of alone deferasirox. (total 24 yrs of chelation   

There is NO Swollen Ankles & Feet but fingers were swollen before 2 days in the morning when i wake up and it got disappeared in half n hour. & my Cardio is not worried with LVEF 54% , he said it is ok.

@ P
i also got hypo twice , @ 8.30PM on sunday & monday and also at 5.30AM today
I dont know what is cinamon.

My HbA1c is 7.2 (avg 193ng/ml, 3 months)

Rest all the tests .. it is a big list , pre operative, is normal ,,, ooh god thanks u very much

D,

Cinnamon is Tuj/Taj.

My heart is paining at times since this morning though, is it a gas trouble probably? Only left side pains at times at every 1 second interval for a while. I assume it's a gastric trouble. Was paining while I type and now it has lowered, haha.

Dear Pratik,
Same pain here
Dil me kuch kuch hota he 
It is due to cardiac iron and gastric both

Dear Pratik,
Same pain here
Dil me kuch kuch hota he 
It is due to cardiac iron and gastric both

Stopped now.

I think mine is solely due to gas lol.

Hope you feel well Dharmesh!

-P.