Start decreasing Fe

I wish your daughter good health and decreasing ferritin reports.
Splitting the dose work very well. With Exjde ferritin sometimes increase before it decrease. That is normal. However, I hope it decrease soon.
Best wishes!

It takes time to clean up the iron load. Continue with her chelation faithfully, but don't expect to see immediate results. Exjade works in the organs and tissue first, so you will not see a reduction in ferritin until the more dangerous iron has been removed.

If dosage are skipped regularly than it is better to give it once

Hello friends ! thank You for your support.
Health to All of You , You are the best !!!
Exjade noise rarely .
drink regularly to speak )))
thank You .
Jamal

Hi Andy and All,
M back after a long.
Feeling nice after coming here back....

On 23rd April, Dr M B Agarwal mumbai based hemo. coming to Rajkot for a Seminar.
If anyone has any question please post i wiil try to get the answer from him.

P.S. Dr Agarwal is well known hematologist in India for thalassemics

I was fortunate enough to meet Dr Agarwal at the Pune conference in 2005. I'd like to know if he sees continued progress in blood supply safety in India.

Hi Andy and All,
M back after a long.
Feeling nice after coming here back....

On 23rd April, Dr M B Agarwal mumbai based hemo. coming to Rajkot for a Seminar.
If anyone has any question please post i wiil try to get the answer from him.

P.S. Dr Agarwal is well known hematologist in India for thalassemics

Dharmesh,

Dr Vijay Ramanan is also hosting a conference in Surat on 24th at place of the child who is 8 months free from transfusion too. My dad is going to go. Are you coming? And guess what, who switched the sides? Dr. Nikhil Sheth will be visiting too. :D

I was fortunate enough to meet Dr Agarwal at the Pune conference in 2005. I'd like to know if he sees continued progress in blood supply safety in India.

Dr M B Agarwal emphasized on taking blood tasted by NAT method.

Dr M B Agarwal emphasized on taking blood tasted by NAT method.

What is NAT method?

Edit - Saw your reply in another topic. Got it!

Hi,
Congratulations Dharmesh for ur consistent efforts. Ur journey is truly inspirational!!

I have the same problem of high level of iron. Its around 15000.
But my Dr has always advised me to take desferol for iron chelation. Thy are not giving me any oral chelators which i hav always requested them for. But thy hav always denied to give me asunra or kelfer. My iron level is increasing.. uncontrollable!!
Plz guide me how shud i reduce my iron? Shud i start the combination therapy my self??

Secondly, since past few years i hav spleen issues. My frequency of transfusions is 2 units every 2 weeks. My platelts are vry low. 13 thousand only & some times even less.
Now my dr hav allowed me to go for spleenactomy. So currently im planning for it.
Plz guide me abt wht precautions i need to take pre and post spleenactomy??

Andy, Dharmesh,.. plz guide

Asma

 You need combination chelation. Your ferritin is too high to handle with just one chelator. Any competent thalassemia doctor will tell you that. If you can manage to get the oral chelator, I can advise you on dosage.

How large is your spleen? Do you take folate?

So Finally,
After 10 years , My S. Ferritin came to 624.5 ng/ml. So now it's below 1000 ng/ml.
Thank You So much Andy, for all of Your motivation, guidance and constant support which made it a reality to bring down the iron.

Now, on 500MG DFX Only per day.

Thank You So Much Thalpals...

Dharmesh 

Dharmesh,
That is wonderful news! I am so happy that you continue to find the inner strength to do what is necessary to maintain a good life.