Symptoms of congestive heart failure?

Hi everybody.

I visited that family doc of mine (who also is a heart specialist) and got ECG (Electronic Cardiogram) done.

It was perfectly normal.

I will get T2* done shortly.

-P.

Any comments Andy about ECG being normal?

-P.

Both ECG and Echo can show normal heart function, but your heart can still be iron loaded. It's good that heart function is showing normal, but the iron load continues to be the needed focus. I feel you are on the right path.

Both ECG and Echo can show normal heart function, but your heart can still be iron loaded. It's good that heart function is showing normal, but the iron load continues to be the needed focus. I feel you are on the right path.

My Echo is normal and LVEF at 62% but Cardiac Iron Score is 7.8 which is poor. Inspite of having normal Echo i am having mild chest pain. So one can't solely depend on Echo.

Same thing on part of Liver, SGPT is 32 but the Hepatic Iron Score is 370 which is agaiin poor.

So, primary tests sometimes fails to indicate danger, if any.

Exactly right, Dharmesh. By the way, my friend, Nur had a T2* similar to yours. Desferal 7 days a week brought the score up to almost 14 after one year and over 20 after two years. Patience and compliance will pay off.

So Nur is the person whose score was quoted by you in reply of my earlier post of motivating me.

Let me wish Congratulations to Nur on achieving normal T2*

If Nur was chelating 7 days a week for 2 years then what was the daily dosage of Desferal 1g, 1.5g or 2g? Was it for 24 hours?

P.S. It was also happened to another friend whose Echo is normal, ECG rytham shows fluctuations and T2* is poor, So it happens to many. And Again primary test should not be relied upon in toto.

Dharmesh,

You may know Nur on Facebook, as she is part of our groups. I believe it was 12 hours a day, 7 days a week. I do not know what dose she was taking.

Not relying on either of the tests. Am stressing this time enough for myself and also to dad to pay a visit during this time my transfusion is scheduled (after 14 days). Actually, schedule is very hectic these days.

-P.

Not relying on either of the tests. Am stressing this time enough for myself and also to dad to pay a visit during this time my transfusion is scheduled (after 14 days). Actually, schedule is very hectic these days.

-P.

There are some guys at Ahmedabad who are helping hand and may help you in getting this complete. If you want to contact , tell me , i will send you the no.
They are also on Whatsap and running a group on Whatsap, If u want to join.