Thalassemia Patients and Friends
Home
Help
Login
Register
Checklist for thal majors?
Thalassemia Patients and Friends
Discussion Forums
Thalassemia Major
Checklist for thal majors?
« previous
next »
Print
Pages:
«
1
2
Go Down
Checklist for thal majors?
17 Replies
15255 Views
Andy Battaglia
8793
Gender:
Will thal rule you or will you rule thal?
Re: Checklist for thal majors?
«
Reply #15 on:
November 29, 2012, 11:32:40 PM »
Tests in general vary. Small differences in hemoglobin level are insignificant. In addition to test margin of error, with the hemoglobin test, variations in the level of hydration also affect the test.
Logged
Andy
All we are saying is give thals a chance.
BabyI
44
Re: Checklist for thal majors?
«
Reply #16 on:
November 30, 2012, 05:57:02 AM »
Thanks Andy. I guess then just stressing about the hemaglobin number isn't the best thing to do.
Logged
BabyI
44
Re: Checklist for thal majors?
«
Reply #17 on:
January 16, 2013, 12:16:13 AM »
Update on my BabyI
Today went to the doctors for regular blood count. They do a neede stick on the foot. I guess I allow that rather then anywhere is because its less upsetting then seeing them poke all over on her tiny hands or arms and them seeing the bruising for days. Doctor said the heel stick is fine but not as accurate. Anyways the previous two times the blood count seemed to be up but this time it's 6.8. I'm sure it's probably in low 7's but nonetheless it's lower then previous. My doctor suggested phenotyping and then transfusing. I'm not entirely thrilled about this because I want the doctor in the excellence center Dr. Giardina to see her as well before beginning. My daughter has been cranky a lot and doesn't sleep well during the day but that could be because I became sick and my milk supply went down. Are there any other signs I should look for? Dr. Giardina will see my daughter in 2 weeks, is that too long to wait? My daughter was 14.5 lbs a month ago and is 14.7 now. Not much but again could be my fault. I want to do what's best for my baby but I don't know what is best right now; to wait and get a final evaluation from treatment of excellence or go ahead with transfusion?
Thanks
Logged
Print
Pages:
«
1
2
Go Up
« previous
next »
SMF spam
blocked by CleanTalk