Hello Everyone,
I am sure there may be some moms who are pregnant and found out their child has thalassemia. They may be wondering what to do after searching and learning about the illness. I too recently discovered that my now two month old has thalassemia. I understand the sadness, confusion, heartache and worries that you are experiencing. But I wanted to relate my situation in case it may benefit you.
When I was pregnant, I was offered the amnio test to determine fetal defects. I refused it; mainly because I don't believe in terminating my baby, not only because of my religion (Islam) but also because I feel my baby is a gift given to me from Allah (God). But I can imagine if I did take the test. What I would have been told would have surely worried me and caused be to consider if I should keep the baby (if I wasnt sure about it). You will be told that your baby isnt going to make it pass a certain age or that this illness would cause so many problems. A desperate mom may feel she couldnt go on with the pregnancy.
From my experience, and I am sure many on here will agree, I wouldnt even imagine not having my baby whether with thalassemia or not. Ofcourse, without it would have been ideal but I look at it this way. Its as if Allah showed me my child and said she will have thalassemia and then asked me whether I would want her. I would beg to have her. Just to be able to see her smile at me would be worth the world. Yes, it may be tough at times to see her go through things or for me to deal with things but that would be nothing compared to me cuddling her, seeing her look at me with her beautiful eyes or seeing her grow up through out life.
This forum has helped me realize this and showed me there is hope for my child to one day get a cure. There is no reason to despair. I could not imagine a day without my child. And I believe you will one day say the same.
I write this in hopes of helping anyone who is pregnant and lost as to what to do.
BabyI's mom