Hi,
I'm glad to announce of launching of an informational page about Thalassemia (and mainly major type):
http://thalassemiamajor.comI was developing it since yesterday. With some very extraordinary and amazing articles found on Thalpal, and with consent of Mr. Andy, I've provided general information about thalassemia and also contributed some excerpts from my side.
I have also provided the source links to relative articles, as well as wrote about our this discussion forum, if anyone finds that site and wishes to see.
I have had this and thalassemiamajor.net domain since long and I thought to make use of it (as I'm a web developer) and help those parents and patients that are in seek of the crucial information about their newborns.
I wish that we will have more people here discussing about their problems and views by finding the site.
I have also provided a Google Translate tool in the very top so even people who are not familiar to English language can take advantage of the information.
Please let me know if you people have any feedback(s) or want me anything more to add.
-P.