Continuous issues with Exjade.

Pratik,

Your liver values are fine and you show no sign of jaundice. Even though the location of the pain is in that area, there is no sign that liver function is affected. A blocked duct would result in an increase in bilirubin level, but could be missed in a scan if the ducts weren't examined closely. I also think that would probably cause constant pain. Is there a possibility that gallstones were missed in the scan?
Take a look at the symptoms listed on this page and see if it matches yours.
http://www.officialhealth.org/pain-symptoms-charts.htm

Pratik,

Your liver values are fine and you show no sign of jaundice. Even though the location of the pain is in that area, there is no sign that liver function is affected. A blocked duct would result in an increase in bilirubin level, but could be missed in a scan if the ducts weren't examined closely. I also think that would probably cause constant pain. Is there a possibility that gallstones were missed in the scan?
Take a look at the symptoms listed on this page and see if it matches yours.
http://www.officialhealth.org/pain-symptoms-charts.htm

Oh Andy,

I'm now more scared. It pains to me somewhere about that colon cancer mentioned region.

http://coloncancer.about.com/od/coloncancerbasics/a/colcansymptoms.htm

I've no symptoms from above link, but see the below link:

http://health.nytimes.com/health/guides/disease/colon-cancer/overview.html

It mentions some sort of stomach area ache and also that lymphoma can cause it. I likely don't have any lymphoma or that lol but I do have swollen lymph nodes. But sometimes it pains in left too.

Moreover, I've some swollen (or I feel so, but it's definitely little what swollen but the doc doesn't think it's swollen) right part near the colon I think, I'm uploading an image and highlighting the area in red box near it (and not, that guy is not me :P). I don't know if normal people has like that also.



I don't know if that area was like that from start or not or lol I noticed it out of the blue, unknowingly. The pain is uh...not sure if it's there or slightly adjacent to it.

I think I'll get an abdomen specialist appointment today itself.

Andy,

if it was a colon cancer issue, the sonography would have pointed it out doesn't it?

Also this doesn't indicate any appendix right as that would be pointed out too in the sonography?

I feel the stomach swollen/full from right and left (same happened last time after transfusion). Could it be a cause of excess fluids or fluids getting gathered in stomach region? I took a rest today so I'll be most likely going to Abdomen doc/specialist tomorrow.

-P.

Pratik,

The area indicated would suggest appendicitis, and appendicitis would be affected by ingesting almost anything, and I suspect an increase in blood volume after transfusion would also occur. Please see your doctor and have him examine your appendix physically. Appendicitis can linger for some time and dissipate or burst and cause some real problems, as once happened to me. Pain in the lower right quadrant is almost always appendicitis. If your doctor suspects this, he will most likely recommend removal. Today, that is a simple procedure and you might be home the same night, as my son recently experienced. It is nothing to worry about and if it is the appendix causing this trouble, you will be very glad to get rid of this beyond useless extension. My intestinal health has improved so much since mine burst and I recovered, that I wish I had got rid of it earlier.

Pratik,

The area indicated would suggest appendicitis, and appendicitis would be affected by ingesting almost anything, and I suspect an increase in blood volume after transfusion would also occur. Please see your doctor and have him examine your appendix physically. Appendicitis can linger for some time and dissipate or burst and cause some real problems, as once happened to me. Pain in the lower right quadrant is almost always appendicitis. If your doctor suspects this, he will most likely recommend removal. Today, that is a simple procedure and you might be home the same night, as my son recently experienced. It is nothing to worry about and if it is the appendix causing this trouble, you will be very glad to get rid of this beyond useless extension. My intestinal health has improved so much since mine burst and I recovered, that I wish I had got rid of it earlier.

Damn, I'm so scared now. 

But Andy,

It pains slightly at the left side in the same region almost. Appendicitis also affects left side? How the hell this happens, lol, all problems attacks me only every time...

I've appointment today evening, lets see what doc has to say...

And wouldn't sonography catch it? Also apart from stomach pain listed for appendicitis symptoms, I have nothing. I don't have nausea, vomiting, weight loss, and I can eat well too and my appetite is good as well.

Also, my mid section of stomach never pains, which I think is the most warranted area for sign of appendicitis as well?

-P.

Damn, I'm so scared now. 

But Andy,

It pains slightly at the left side in the same region almost. Appendicitis also affects left side? How the hell this happens, lol, all problems attacks me only every time...

I've appointment today evening, lets see what doc has to say...

And wouldn't sonography catch it? Also apart from stomach pain listed for appendicitis symptoms, I have nothing. I don't have nausea, vomiting, weight loss, and I can eat well too and my appetite is good as well.

Also, my mid section of stomach never pains, which I think is the most warranted area for sign of appendicitis as well?

-P.

Andy,

I've been at doctor specializing in gastro and stomach operations.

I don't have appendicitis.  I too didn't felt pain near belly button so I was little scared but positive that I might not have it neither I did had other symptoms.

He tells the pain might be caused due to iron overload, which I think is not right. I'm confused and sad, there is no real medicine prescribed except these two:

1. Rabeprazole Sodium.
2. Ursodeoxycholic acid BP (300 mg).

I guess the second one is more of a liver antioxident and first one is for gastric? Could this be helpful for pain in both side?

He told me to see him up after 15 more days and he'll research for other possibilities if pain still exist and might get me done a CT scan if needed.

Your feedback will be appreciated.

-P.

Are you taking any herbal medication? When my boys took some quite a long time ago their ALT went up to 300. They didn't have any pains though but they stopped the herbal stuff immediately and the Alt reading eventually came down after a few months.
 

Emby,

No I'm not taking any herbs beside turmeric which promotes liver health. And my ALT/AST are normal now that I've stopped Exjade, so the cause may or may not be related to liver, unsure. 

Andy,

I've been at doctor specializing in gastro and stomach operations.

I don't have appendicitis.  I too didn't felt pain near belly button so I was little scared but positive that I might not have it neither I did had other symptoms.

He tells the pain might be caused due to iron overload, which I think is not right. I'm confused and sad, there is no real medicine prescribed except these two:

1. Rabeprazole Sodium.
2. Ursodeoxycholic acid BP (300 mg).

I guess the second one is more of a liver antioxident and first one is for gastric? Could this be helpful for pain in both side?

He told me to see him up after 15 more days and he'll research for other possibilities if pain still exist and might get me done a CT scan if needed.

Your feedback will be appreciated.

-P.

Hi Andy,

Any feedback or info?

-P.

1. Rabeprazole Sodium. is used to inhibit gastric acid secretion. It is used to treat heartburn and also used in treatment of ulcers.
2. Ursodeoxycholic acid BP  is used to help dissolve gallstones.

Glad to hear there's no appendicitis. It appears that the doctor is taking the approach that either the gallbladder and/or an ulcer may be implicated. I think this is the proper approach, especially with the appendix ruled out. If this works, you should hopefully be able to use Exjade again.

1. Rabeprazole Sodium. is used to inhibit gastric acid secretion. It is used to treat heartburn and also used in treatment of ulcers.
2. Ursodeoxycholic acid BP  is used to help dissolve gallstones.

Glad to hear there's no appendicitis. It appears that the doctor is taking the approach that either the gallbladder and/or an ulcer may be implicated. I think this is the proper approach, especially with the appendix ruled out. If this works, you should hopefully be able to use Exjade again.

Thank you very much Andy.

If it's gallstones, is it a matter of caution or alarm? Would I need to operate if there is something severe? And gallstones pains on both the side? And I assume ulcer in stomach?

So let's assume that I might have gallstones, so taking Exjade now would be dangerous?

Also, after I eat little too much or drink a lot of water, the mass on both sides in the mid cross-sectional area (on left and right) increases and pains little more. What would this be? Also I'm not sure whether these medicines would affect me or not, very frustrated. I'm a guy actually who has problems and believing or buying into something too quickly, lol.

-P.

Thank you very much Andy.

If it's gallstones, is it a matter of caution or alarm? Would I need to operate if there is something severe? And gallstones pains on both the side? And I assume ulcer in stomach?

So let's assume that I might have gallstones, so taking Exjade now would be dangerous?

Any feedback Andy?

-P.

Gallstones are very common in thals. The medicine may help to dissolve them, and taking magnesium may help prevent their formation to some extent. I would say that since your doctor is giving you meds, there is no alarm. When there is alarm, your doctor will talk about removing it. Like the appendix, it is not a big deal to remove, if it ever comes to that point. I would say just take the meds and see if you're feeling any better. Taking Exjade should not cause problems with the gallbladder, so let's see what happens with the meds. Don't try to resume Exjade until you finish the meds and feel some relief from the pains.

Gallstones are very common in thals. The medicine may help to dissolve them, and taking magnesium may help prevent their formation to some extent. I would say that since your doctor is giving you meds, there is no alarm. When there is alarm, your doctor will talk about removing it. Like the appendix, it is not a big deal to remove, if it ever comes to that point. I would say just take the meds and see if you're feeling any better. Taking Exjade should not cause problems with the gallbladder, so let's see what happens with the meds. Don't try to resume Exjade until you finish the meds and feel some relief from the pains.

I'm starting to feel relief I believe Andy. Hope this thing works out.

-P.

Sad but today, I'm again feeling the burns and pains on both the side.

-P.

Since last night,

The pain has also come over little right to my belly button. It's very minor or some discomfort, we can call though. What the heck is happening? I've my appointment on 25th but I'm planning to get it early tomorrow. Very scared about this mysterious pain.

Or maybe it's nothing but some sort of temporary muscular situation related ache. Things make you think weirdly when you've lot of problems surrounded. Or an "intolerable" dose of Kelfar can cause such thing?

-P.

Hi Andy & everybody,

I haven't updated the status these past days.

Well, Andy, this damn pain appears to be loads of gastric problem and constipation problem, that is/was running from past 1 AND HALF month, can you imagine that? 5 days ago, before going to my stomach doc again, I decided to give my physician one more try (he's our family doc, MD, and a very good nature guy). While leaving the clinic, I bid my opinion and asked him to prescribe me any gastric/constipation related medicine, just worth hitting my shot at it.

He prescribed "Unienzyme" and I've been taking two of those daily. I've also been taking some Ayurvedic Churnas (powders) regarding constipation/gastric issue.

Now, this all started (the pain) on 2nd December, first with lower left side, then right and then middle (it was like burning sensation).

I don't know who the real culprit is was, whether IP6 (I'm thinking on this because you mentioned somewhere it might have digestion issues, but can it run THIS long? - I started with 2 each day on 26th November but discontinued since mid December) OR Wood Apple. I was eating 3-4 wood apples a day since mid November or so, some of those might even have had fungus or any bacteria which I could not see (I used to throw spoiled ones, which were majority). But I discontinued them too once you asked me to stop consuming them.

Now 5 days after taking this medicine along with Ayurvedic Churna, the pain is subsiding and I'm feeling well. I can finally feel the gastric movement of gas within my whole stomach. Not to mention the increase in burps and the irregular stool, which probably started after taking this med as it started doing it's effect.

I'm relieved like 60% but still not completely free from whole this gas stuff.

Am I on the right path? Because I think so.

Any suggestions will be good.

-P.