Pain on lower back

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Offline fifififi

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Pain on lower back
« on: January 22, 2013, 02:37:58 AM »
Dear fellow thaller, i've been experiencing pain in my lower back since few years ago. Is it a normal condition for us thaller or what? The pain is like spreading but only on my lower back, i think its my bone.. What should i do?

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Offline Pratik

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Re: Pain on lower back
« Reply #1 on: January 22, 2013, 05:50:18 AM »
Hi fifi,

First of all, what chelator are you using? L1/Defriprone/Kelfar is known for causing backpain, I too suffered sometimes in past when I was taking it.

Next, have you got your Vitamin D and calcium levels checked? Low Vitamin D levels often results in mild to severe pain in back/spine and legs, also causing Osteoporosis. I'm an Osteoporosis sufferer, in 2009 I was also hit with low Vitamin D levels and thereby causing Osteoporosis. However, today I'm better but still struggling to gain my lost strength and cope up other issues.

So I'd advise you to get your Vitamin D/D3 levels as well as serum calcium checked. Depending on your results, if Vitamin D maybe very low, you might be prescribed a small injection, which'd easily raise your D levels back to normal. Also, you're required to take Vitamin D daily, and go or stand into Sunlight, as it's very good and natural source of Vitamin D, if available in your country (for example, you might be living in a snowy country and thereby unable to get most of it from the sun).

-P.
Every child is special.

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Offline fifififi

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Re: Pain on lower back
« Reply #2 on: January 22, 2013, 05:19:15 PM »
Thank you for the reply, Pratik.. I've been using deferiprone as my chelator.. I didnt know that it might be the cause of my low back pain. And about vitamin D, i never checked mine, neither consume it.. My doctor just prescribed me chelator, folic acid, and vitamin E.. Well, maybe bcos i never complain of my back pain i think..

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Offline Pratik

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Re: Pain on lower back
« Reply #3 on: January 22, 2013, 07:23:49 PM »
Thank you for the reply, Pratik.. I've been using deferiprone as my chelator.. I didnt know that it might be the cause of my low back pain. And about vitamin D, i never checked mine, neither consume it.. My doctor just prescribed me chelator, folic acid, and vitamin E.. Well, maybe bcos i never complain of my back pain i think..
Oh, then Defriprone might be the possible cause. Just to rule out the cause, try to stop taking defriprone for at least 2 days and see if you find any relief. If you do, it might be worthwhile to switch to some other chelator like Exjade/Defrasirox.

Also, yes, get your Vitamin D levels checked this time.

And add B-complex to your regime along with Vitamin E and folic acid as it helps you to maintain overall fitness and fight against fatigue/tiredness.

-P.
« Last Edit: January 23, 2013, 06:51:26 AM by Pratik »
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Offline fifififi

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Re: Pain on lower back
« Reply #4 on: January 23, 2013, 02:44:11 AM »
Okay,, thank you for the explanation.. I appreciate it so much.. I'll go to my doctor and consult this in my next appointment.. :)

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Offline Rehman

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Re: Pain on lower back
« Reply #5 on: October 07, 2013, 08:09:17 AM »
Hi dear fifififi and Pratik

i have i also lower back pain and joint pain with Defripron  (feriprox) from 1 month then  i stop

and i have HCV positive  i cant use exjade and only desferal is to tough i was using 12 tablets a day since 2007 to 2012
i was feel normal that time and that time  my iron level was to high.
 and now im using 6 tablets a day and my iron level is lower than 1000
im not good feel with feriprox pleas help me give some tips ?
im to worry for my chelation becouse i work hard

thanks im waitng for your reply
THALASSEMIA  MAJOR.

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Offline Pratik

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Re: Pain on lower back
« Reply #6 on: November 10, 2013, 07:26:39 AM »
Hi dear fifififi and Pratik

i have i also lower back pain and joint pain with Defripron  (feriprox) from 1 month then  i stop

and i have HCV positive  i cant use exjade and only desferal is to tough i was using 12 tablets a day since 2007 to 2012
i was feel normal that time and that time  my iron level was to high.
 and now im using 6 tablets a day and my iron level is lower than 1000
im not good feel with feriprox pleas help me give some tips ?
im to worry for my chelation becouse i work hard

thanks im waitng for your reply
Hey Rehman, I hope you are feeling well, sorry this post didn't came to my notice.

Its good that you've got control on your iron levels, congratulations for the big victory!  :wink

Well, I see you've positive HCV. Hmm. Maybe take an advice from your managing doc as to what you can do for it. I mean at your current ferritin level, I guess very low dose of Exjade/Asunra may work as well and therefore not affecting liver more. Or perhaps another option might be to stop kelfer completely for 3-5 days and once you start feeling well, take the dose from low level and continue to gradually (very slowly) increase it, and keep monitoring your iron levels. If even at low dose of Kelfar, the iron levels remains stable and gradually decreases and you feel fine for your joint pains, than that would be an excellent way to follow and continue on Kelfar.

Also while you try and manage with Kelfar, I'd advise to put yourself on traditional treatments for healing your liver and possibly reversing HCV entirely! Herbs like nigella and Milk Thistle (I take 500mg milk thistle regularly, you can order it online easily) are both provides an excellent value for your liver.

Also Haldi / Haldar (Turmeric) provides great effect for curing your liver. I take it twice mixed with honey so it doesn't spoil my mouth with a slightly bad taste of Turmeric. You can implement taking Turmeric with Honey daily (twice if possible) and I'm sure that would help a lot as well. This and add milk thistle to your arsenal and I'm sure both would have a very positive effect for you.

I hope you're okay as this post was more than a month old. Feel free to ask any questions!

Best,

-P.
Every child is special.

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Offline Rehman

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Re: Pain on lower back
« Reply #7 on: November 24, 2013, 12:17:37 PM »
 Thanks a lot pratik for reply
is milk thistle and haldi and nigella are good for high sgp  of liver
THALASSEMIA  MAJOR.

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Offline Pratik

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Re: Pain on lower back
« Reply #8 on: November 29, 2013, 04:51:41 PM »
Thanks a lot pratik for reply
is milk thistle and haldi and nigella are good for high sgp  of liver
Of course, absolutely!

My SGPT and OT levels used to stay around 110 or so. But after taking 500mg of milk thistle daily, it is around 70 or less (both values). And that is with my irregular taking of those, if I take it regular, it'd be far better around 55 or less.

Hope that helps.

-P.
Every child is special.

 

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