Just received supplements from Puritan.com

Andy Battaglia

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Will thal rule you or will you rule thal?

Re: Just received supplements from Puritan.com

« Reply #15 on: June 11, 2013, 02:47:36 PM »

I love seeing patients take control of their lives and turn things around as Pratik is doing.

Concerning vitamin D, we are learning what should be most obvious. Life on earth is possible because of the sun, and human life is no exception. Our bodies are designed to absorb massive amounts of D from the sun, but in today's world, few of us get adequate exposure to sun. D is intricately involved with most bodily functions. We cannot ignore it if we are to be healthy.

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Andy

All we are saying is give thals a chance.

Sushil

39

Re: Just received supplements from Puritan.com

« Reply #16 on: June 11, 2013, 03:05:25 PM »

Hi Pratik,

My Name is Sushil and My daughter who is 4 Year old diagnosed with Thalassemia major. we recently got to know that she is Thalassemia Major. Though I am still working with Doctors to confirm whether she has Thalassemia major or Intermedia but meanwhile her doctor start hydroxyurea to her. so far she has only 4 blood transfusion done (BT start from Feb-13 onward) and no chelton. They told me that it will start after 7-8 BT.

I see that you are posting lot of information on site regarding supplement which should be given to children along with BT. can you please suggest me what are the supplement i should start giving to my child for her good health in future. I am not from medical line but don't want to Compromise anything for my child just because of my less knowledge.

the only medicine I am giving to my daughter are
1. Hydroxyurea (125 mg daily)
2.Bethadoxin-12M syrup (1 teaspoon daily)
3.Ostocalcium B12 Syrup ((1 teaspoon daily)
4. Folic Acid 5mg (evey alternative day)

Beside this I am planning to start Wheat grass powder to her(as its not available in capsule in delhi i guess) may be 1 teaspoon daily, also planning to buy IP6 but it will take some time.

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Andy Battaglia

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Re: Just received supplements from Puritan.com

« Reply #17 on: June 13, 2013, 02:33:05 AM »

I would suggest adding magnesium, either as a calcium, magnesium, vitamin D3 supplement, or magnesium alone to supplement the Ostocalcium. Magnesium also complements the hydroxyurea, helping it to work better, Something like Osteocare is good because it also contains zinc. I also suggest 100 IU natural vitamin E daily for its antioxidant effect.

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Andy

All we are saying is give thals a chance.

Rashmi

Lets embrace one another with love and understanding.
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Re: Just received supplements from Puritan.com

« Reply #18 on: June 13, 2013, 05:15:41 AM »

Quote from: Pratik on June 11, 2013, 07:12:30 AM

Rashmi,

Do not worry at all. We all are here to support each other.

I've seen some very deadly days in my life, even the days when I was asking to die instead of baring the unbearable pain due to osteoporosis. And look today, however, I'm still not reverted back exactly to how I was, but I'm slowly approaching that with keeping on my supplements regularly.

I agree that supplements can sometime be very tedious to be taken and mood swings can occur, but think of the brighter future they're going to bring.

Talking of March 2013, I could not sit on my joints and I had to immediately wake up as my leg joints felt extremely brittle. That's when the ordered D3 from Puritan came and I started to take it religiously combining it with calcium/magnesium. I did initially took mega doses of 20,000 IU/day for around a month or a slight more and currently taking 15,000/day until my next report which should be in around 5-6 days and will see if I need to adjust the dose or what.

And within a month or so of taking D3 and things regularly, oh boy my legs are now turning back like the old Pratik had at one time before Osteoporosis. When now I bend down on my knees to look for something under the bed or sofas or so, I don't get that much pain there neither I feel brittle and this is only improving day by day, every day.

So once you will start seeing the results, you'll yourself be quite motivated to take supplements. Remember, supplements are not optional for thals, make it your religion and promise to yourself to take it every day for yourself, for your betterment and your family, too.

I'd definitely recommend ordering some key supplements like D3 (Puritan has reduced prices and now you can get 200 softgels in one bottle instead of 100, previously and they've good buy 1 get 2 free offer running currently), Calcium, Magnesium Citrate, Milk Thistle, to be very least, if possible.

You'll definitely start noticing the difference.

I now officially throwed away my osteoporosis medicines (Risedronate - Risophos) after taking D3, otherwise I was taking them since past 3 and half years at every week and couldn't do without them. Actually it feels very great and even more great when you take the control of your body and start changing your life.

Remember, the control is in your hands!

Best,

-P.

Thanks Pratik.

You have moved me to tears.
love.

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Rashmi

Keep calm and face.

Pratik

Thal Major.
826
Gender:

Re: Just received supplements from Puritan.com

« Reply #19 on: June 15, 2013, 03:00:10 PM »

Hahaha Oh My God I cannot believe I did this just in less than 4 months which actually takes couple of years to achieve.

See my Vitamin D report that came today haha (check the attachment).

So I roughly remember in February mid, I had my D levels around 28 or so and bones were still brittle. That's when I decided to change my life and I ordered D3 from Puritan as mentioned.

I took mega doses of as high as 20,000 IU daily for 1 and half month and was on 15,000 IU since past week.

So my level surprisingly just shoot from 28 to 62.70 in less than 4 months!

Now, on the serious note though, Andy, my mother got scared, lol, and asked me to stop it for now.

Should I take at least 5,000 IU daily now that I've achieved the levels? Or should I discontinue it for 2 weeks or so?

What would be your input? Is this level kinda can put me in any danger?

And yeah, I'm going to kick Osteoporosis a** with all the force real soon!

And thank you guys (especially Andy) for the great compliments!

All the pat back really goes to Andy and other members of Thalpal due to whom I'm here at this stage today and am changing my life! Thanks everybody!

Regards,

-P.

Oops for some reason, the image gets reversed by 180 degrees but anyway, you get the idea.

« Last Edit: June 15, 2013, 03:08:30 PM by Pratik »

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Andy Battaglia

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Re: Just received supplements from Puritan.com

« Reply #20 on: June 15, 2013, 06:47:12 PM »

Your level is well within the safe range. Some say 80 for the top and some say 100. I would really encourage you to stay at 5000 IU daily. It's a maintenance dose at best. Watch your level and if it starts to drop, raise it to 10,000 daily. I know a guy who was tested at 19. He took 30,000 units daily and raised his level to over 90 in a month. I would not suggest that high a daily dose, but the level can be adjusted rather quickly with high doses.

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Andy

All we are saying is give thals a chance.

Pratik

Thal Major.
826
Gender:

Re: Just received supplements from Puritan.com

« Reply #21 on: June 15, 2013, 06:58:23 PM »

Thanks Andy.

I used to take rocaltrol earlier and I really didn't expected it to rise this quickly. I've read that D3 is great for boosting up levels fast and it's the only thing that is absorbed well and suitable for humans.

I'm quite happy to achieve these levels.

I'll stay on the maintenance dose of 5000 IU daily then, as D is a fat soluble vitamin I think and it will continue dropping down especially since I don't get enough exposure to sun, correct?

I'll keep on repeating the test every 3 months, I think that'd be fine?

Thanks,

-P.

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Andy Battaglia

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Re: Just received supplements from Puritan.com

« Reply #22 on: June 15, 2013, 06:59:41 PM »

For now, every 3 months is good. Once you are confident that your dosage is the correct daily dose, testing can be done annually.

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Andy

All we are saying is give thals a chance.

Pratik

Thal Major.
826
Gender:

Re: Just received supplements from Puritan.com

« Reply #23 on: June 15, 2013, 07:04:41 PM »

Quote from: Andy on June 15, 2013, 06:59:41 PM

For now, every 3 months is good. Once you are confident that your dosage is the correct daily dose, testing can be done annually.

Thanks Andy.

I also forgot to update my Ferritin reports some 21 days ago, it was 45** (don't remember last two digits) but the reduction was no more than 250 units in the last 35 days, but was still good.

I'll get it done next time and see what happens.

Best,

-P.

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Dharmesh

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Re: Just received supplements from Puritan.com

« Reply #24 on: June 16, 2013, 07:44:06 AM »

It is nice level Pratik,

whats ur asunra dosage? are u enrolled in any scheme for Asunra?

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Pratik

Thal Major.
826
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Re: Just received supplements from Puritan.com

« Reply #25 on: June 16, 2013, 08:57:04 AM »

Quote from: HANUMANT AASHRIT on June 16, 2013, 07:44:06 AM

It is nice level Pratik,

whats ur asunra dosage? are u enrolled in any scheme for Asunra?

D,

Just in case if you're mistaken, that's not my Ferritin but my D3 which is 62.70.

My Asunra dose is same, 1700. The ferritin as done as last around 22 days ago was 45XX (not sure of last two digits), which was not a much reduction in 35 days, only like 230-250 units.

I'll get the ferritin done next time.

Unfortunately IP6 is also been discontinued since quite a while due to light stomach issues (not related at all due to IP6 but because of some food I had ate a while ago). I hope to start it soon again though.

And no, not enrolled in any program.

-P.

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Pratik

Thal Major.
826
Gender:

Re: Just received supplements from Puritan.com

« Reply #26 on: June 16, 2013, 09:51:12 AM »

Also Andy,

One thing is noticed is that despite of reaching this level, I'm still not feeling like the days before osteoporosis.

My knees still hurt when I sit on them.

So what it actually takes to recover 100%?

My calcium levels are good too, and now D as well.

Would I be 100% reverted back to what I was?

Or is it like nevermind of reaching this level, but slowly on maintenance dose, it'd continue to improve? Kinda makes me sad. I don't even know how I would recover 100% from the damage done by osteoporosis that I still live with today.

However, I'm better than earlier for sure.

Best,

-P.

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Andy Battaglia

8793
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Re: Just received supplements from Puritan.com

« Reply #27 on: June 16, 2013, 03:45:51 PM »

I can't say for sure that your knees will recover fully, as chelators can also cause joint pain, but I do believe things will improve as you continue to lower your iron load. Yes, this is also affected by the iron load, so just keep working.

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Andy

All we are saying is give thals a chance.

Pratik

Thal Major.
826
Gender:

Re: Just received supplements from Puritan.com

« Reply #28 on: June 16, 2013, 04:22:00 PM »

Quote from: Andy on June 16, 2013, 03:45:51 PM

I can't say for sure that your knees will recover fully, as chelators can also cause joint pain, but I do believe things will improve as you continue to lower your iron load. Yes, this is also affected by the iron load, so just keep working.

Thanks Andy. I'm well aware about Kelfer and some leg joints shape is minor-ly affected by it too, but didn't know Asunra can cause too. But I was fine however before Osteoporosis and was taking Exjade/Asunra since one year before it struck.

However it's not just knees, but the whole legs. It just feels I'm not still there.

Iron load and causing pain? That's interested, never heard before.

Thanks again.

-P.

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Andy Battaglia

8793
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Re: Just received supplements from Puritan.com

« Reply #29 on: June 17, 2013, 12:00:28 AM »

Yes, iron overload causes joint pain. Exercise will help bone strength. Walk as much as you can fit into your schedule. I'm envious of your D level. I have yet to reach 40 and feel that >50 is optimum. Give your body time to get the iron out and to repair the damage that iron caused. It takes 17 months to remove half the iron from your heart, so this is a long process. Once the iron load is low, it is easier to keep it low, because you're no longer cleaning out large iron stores.

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Andy

All we are saying is give thals a chance.