This is something you should discuss with Eileen from CAF. If there is a way to deal with it, she will know.
Cooley's Anemia Foundation
330 Seventh Avenue, #900
New York, NY 10001
(800)522-7222
Fax: 212-279-5999
Patient Services Manager
Eileen Scott
eileen.s@cooleysanemia.org
Please be aware that they've been having some email issues, so you may have to call. Eileen is very helpful and also very nice.