Hi fellow thalassemics

Hi everyone iam new on here, i was very happy to find this website as it would be great to talk to others who have my condition! I have never met anyone else who has thalassemia major. Iam 31 years old, i go for a transfusion every 4 weeks and my ferritin is 600. Iam on dessferal which i take 4 times a week. Anyone in similar situation feel free to msg

Hi Nicole,

Welcome. Here we are all brothers, sisters and friends. You will get a lot of support. Feel free to put up your questions and feelings.

Love and luck

Hello Nicole,

Welcome to the group

I am also thal major , taking desferal and defrijet

This place is very nice for thals.. keep posting

Hi Nicole,

Thalpal welcomes you!

Feel free you share your feelings and ask questions.

Best,

-P.

Aww thanks everyone this is great, nice to know i can come and chat to you guys, sometimes people just dont get what its like haveing a medical condition like ours.

Hi Nicole,

Your ferritin level is good. Have you also had liver and heart scans to measure iron loading in your organs?

Hi Andy, yes i have MRI scans every couple of years.  There is no iron in my heart (touch wood) and just a very small amount in my liver which my consultant said not to worry about as its not a lot.  I have always taken my medication from a very young age, something which i want to tell other thal's to also do as it pays off in the long run.

Hi Nicole,welcome to the group.its such great support to talk to others in same situation! What country are you from?

Hi Nicole,
Welcome to thalpal. It is very nice to know about you ,tell us something more about  you ?

All the best

Shrikant