Poll: Blood Transfusions

Hello all,

My pretransfusion Hb usually sits about 11.5 and I have been going every 3 weeks, but now I will go back to the 4 week intervals. I fluctuate alot betweens trans.

Miaki

My pretransfusion Hb usually sits about 11.5 and I have been going every 3 weeks, but now I will go back to the 4 week intervals.

Just curious about how many units you transfuse at one go? Pre-transfusion HB of 11.5 every 3 weeks on one unit is very good!!

Cheers

I wish I was only getting one unit. I receive 3 units every 3 to 4 weeks, which is about 800 mls of blood.

cheers Miaki

My daughter is getting 220cc. every five weeks. She is not ready for second bag as per hopital staff.

I usually go blood transfusions every two weeks and my Hb about 10.
Sometimes I will go three weeks but if I do that I feel tried than go two week.
The doctor suggests me that I can try to keep my Hb at 9 that is good for me.
So maybe I will change to go every three weeks.

I usually go 3 weeks receive 2 units. My pretransfusion hemoglobin of between 9.5 and 11 . I hear some patient use a "hydrea" and they are go to 5 weeks or more for blood transfuse, Do you know a HYDREA ? So much sorry, I little speake english and I dont know some word.

Hellooooooo to all

I was reading through the posts here and realised that Michelle was due to have her 2nd baby on the 18th july.....does anybody know if she had the baby and how mother and baby is doing?

Hope everybody is well.

Miaki

I usually go 3 weeks receive 2 units. My pretransfusion hemoglobin of between 9.5 and 11 . I hear some patient use a "hydrea" and they are go to 5 weeks or more for blood transfuse, Do you know a HYDREA ? So much sorry, I little speake english and I dont know some word.

Hello Typhoon!

I think you are refering to Hydroxyurea! It has a seperate thread in "Working Towards a Cure" forum at Use of Hydroxyurea in Thals. Please check it out. I hope that you may find the information usefull

Hi everyone!
                 I go for blood transfusion every fifteen days when i get one pack and if I get two packs of blood I go in three weeks.

I go for lab work every 2 weeks and  my hgb determines how much I am transfused.  The orders are 11 and under 1 unit 10 and under 2 units. 

My original hemotologist always said to keep the levels above 10 that it was heathier.  And I read in one of the treatment for thalassemia books that I got from www.cooleysanemia.com "that as long as your hgb is 10 or above your body doesn't store away as much iorn esp from foods eaten."

Hello!
        Welcome to the family! You are doing great keeping your HB above 10. Keep it up!

My Hb level before transfusion is always in the average of 5 to 6 maximum and i get transfusion every 6 weeks as i try to hardly not it gain much iron into my body through the blood transfusion as i'm not using celation currently and waiting to get the Exjade from Europe as it is not available into my country yet. 

Hi to all,
          I am Sahil 18 years old male and a Thal major. i go for my blood transfusions in every 15 days and my pre transfusion haemoglobin is between 8.5 n 9.0.

Hi Sahil,

Welcome to our group. 

 I check hb by 3 weeks and if blud count is less than 9 i go for blud transfusion. Mostly its every 3 weeks, rarely 1 ce a month.