My husband and I recently relocated and got caught up on doctor visits, we neglected for various reasons. I found a new primary care doctor and she found that I had familial neutropenia.
They knew I was anemic since I was about 8 or 9, but didn't find I had thal minor until my teens, and I'm now 59 and this is the first time I've been told I have neutropenia. My question is has anyone else with any form of thalassemia been told this? It makes a lot of sense to me now, since when ever I'm around people/family who are sick, I get sick, but my husband does not.
BTW, I want to thank Andy and the forum, for being here. I can't tell you how validating it was to read about the more recent study which shows that Thal minors do, in fact have symptoms. I grew up in the 60's and can't tell you how sick I am from hearing my whole life that I didn't have any symptoms, when I could look around me and see siblings, friends and my spouse with higher energy levels (and less fatigue) then me and know that wasn't right.