Hello my name is Kathy.
I was diagnosed with Thalassemia Intermedia last year after years of being missed diagnosed and treated with Iron deficient. I recieved Iron infusions and I have been missed instructed by every doctor I have ever seen to take Iron pills
. My hemoglobin averages a low 8 and continueously drops to a low 7, that's when I usually get transfused. I've only reached a 10hmg, once Im transfused.
I recently moved and applied for the new affordable insurance in my state, however I still am waiting for it to begin. In the main while I can only see am internal medicine doctor at my neighborhood clinic who insist that He can't help me and I should learn to live with feeling miserable because its not much a hematologist can do for me either.
He insist that I get on anti-depression event though I have not been expressing depression just frustration because I haven't encounter a doctor who really wants to help me. I've gone to the hospital for light headed and nausea as well as fainting spells and once my hmg levels are 8 they tell me they can't help me and I should go to a my "primary care".
I don't know what else to do. I've already been approved for insurance but until I receive my package I am unable to go to the hematologist. I'm consistently nauseated and light headed. I've fainted several times in the past month. This disease has always interfere with my ability to complete school and maintain a career. After talking to a doctor that pressured me into taking anti-depressions instead of trying to help my thalassemia, just made me begin to loose hope. How can I maintain a life like this.
I've been on wheat-grass since January and I have experience minimum improvement.
Please help.
Sincerely,
Loosing Hope