Hardik

HELLO everyone here
thanks for ur kind suggestions everytime whenever i am in need......
plz solve my  this query also...
In the last month and today when hardik got transfused ,he get fevered upto 101 C--103 C??
why is it so??
he feels so tired and exhausted after transfusions....he niether plays ...nor eat upto levels??

kindly help me plz plz plz

he is now 1yr and 4 mths old

medicines given to him ::
calcium -->4ml - 4ml
folic acid -->2.5 mg
vitamin d -->1 ml
vitmin e -->10 drops

any changes if needed kindly post me


regards
neha(hardik's mom)

Dear Neha,

I wonder if your child is reacting to antigens in the blood. 
Antihistamines may help reduce this.   

Also, was your child phenotype or genotype tested prior to beginning transfusions to endure he is receiving the best matched blood?

Your child should be tested for antibodies so that the blood bank is aware of what antigens your child is sensitive to and they can be avoided in future transfusions. 


Best,

Sharmin

Dear all,

My baby is now 20 months old and I am daily giving her after lunch 1/2 tea bag green tea.She likes it so much.Also I order for wheatgrass tablet.May I continue green tea and wheatgrass both? Present green tea quantity is ok or not ?After 9 transfusions last month her serum ferritin test result was 459.So I am not start any chelating like Exjade or Asunra.Please advice..

You're doing good, Lokkhi. Continue both tea and wheatgrass.

Hello Andy,

Thanks. Everything is possible only for you.

My baby has currently lose her some weight.Is it green tea affect?As I know green tea reduce weight.So is it not harmful for growing child ?

Her stool is always black.Is it for iron comes out for green tea or for folic acid which one?

Please advice.

Lokkhi,

You can use black tea, also. Don't make it too strong at this age. Has her appetite changed?

Her appetite is ok.Why her stool is always black pls advice Andy.

Lokkhi,

Are her movements regular or is she constipated? Iron will make stools darker as it is removed, so the tea may have some noticeable effect.

Hello Andy,

Please note, her movements is regular and  she is not constipated...

Thanks

Hello everyone
My boy is now 18 months old .last time his ferritin test was done and it came to be greater than 5000...(shocking) ?
Is this possible for such a small child...
Till now he had 12 transfusions
Doc had recommended to retest...and I'm waiting for positive result
Plz pray for me....
And plz guide me what should I do after report in hands...

From where do I get wheatgrass tablets ...plz let me know?

Retest report indicates 1720  ferritin level.....which very high....what should I do to decrease it....guide me plz

The child will have to begin chelation soon. Don't worry too much about ferritin. These test results are not consistent and somewhat unreliable. Wheatgrass tablets and powder are fairly easy to find. Where do you live?

I m from Karnal,Haryana,India....and had search all the medical store nearby...but failed to find tablets....he got his last transfusion on 18  ....and here in CHD PGI ...docs meet thals only twice a week ....so his reports will be presented to doc next month on 13.....and there docs don't recommend wheatgrass juice or tablets ....they called it a waste....so I m confused a little bit ...what to do or not....

Plz also guide me about the other test that are necessary for thals....here docs recommend only ferritin .,thyroid,sugar once in 3months....


Neha

There are many sources for wheatgrass in India. http://catalogs.indiamart.com/products/wheat-grass-powder.html

The Standards of Care for Thalassemia can be found attached to the post at http://www.thalassemiapatientsandfriends.com/index.php/topic,1762.msg14639.html#msg14639
You will find the information you need in that document.