She has been active in Bangladesh. I find her to be an enigma. On one hand, she has done work in Asia on behalf of thals, which is truly a good thing. On the other hand, she allowed stubbornness to blind her to the reality that there was something wrong with her findings. The findings and real life observation of those using deferiprone never supported what she found. But beyond that, one of our senior members was basically abandoned by Dr O when our member's child developed a tough to treat problem. If not for this group, that member would have been left lost and without direction. I find abandoning patients unjustifiable.
Canadian Family, I remember that Exjade hit the market and gave you great relief. As I recall, there was concern about the effects of desferal on her hearing, as well.
I've seen too many patients die because the current chelators were not sufficient. I've seen patients like Ashish, Miaki and Gargi die because even with three available chelators, none suited them (although in the case of Ashish, it had more to do with an error in diagnosis by his doctor who took him off of Kelfer, than the chelator being unsuited for him). To see ego have block Ferriprox from approval is a stark lesson in human nature and the importance of being honest with ourselves. When no other research could duplicate the results Dr Olivieri claimed, and we had to take her word on that, as she refused to give her research to ApoPharma, the company that had commissioned and paid for that very research, then Dr O should have asked others to review her findings and then also be willing to review the research of others, which showed no fibroids being caused by the drug and the drug proving to be an excellent chelator of cardiac iron, as well as being cardioprotective. Ego is never more important than human lives.