Saturday – April 18, 2015
Children’s Hospital Los Angeles (CHLA)
4650 Sunset Boulevard
Los Angeles, CA 90027
This conference is FREE to all attendees.
Please RSVP by April 12, 2015RSVP to Kelly Russell by calling: 323-361-3269 or emailing: krussell@chla.usc.edu.
In your phone message/email, please include the full name(s) of each attendee, as well as a phone
number where you can be reached. Also, please include the ages of those under 18-years-old.
Space is limited and an RSVP is mandatory.If you do not RSVP, there may not be space available to you at the conference.Schedule of Events09:30 - 10:00 Registration and Light Refreshments
10:00 - 10:15 Opening Remarks - Paul DiLorenzo, PhD (TSF President)
10:15 - 11:15 Standards of Care for Thalassemia - Thomas Coates, MD (Children’s Hospital Los Angeles)
11:15 - 11:30 Break
11:30 - 12:30 Transitioning from Pediatric to Adult Care - Susan Carson, MSN, RN, CPNP (Children’s Hospital Los Angeles)
12:30 - 12:45 Sanguine BioSciences, Inc. - Kristen Warren, Director of Clinical Operations
12:45 - 02:00 Lunch
02:00 - 02:30 Bluebird Bio - Alexandria Petrusich, Director of Clinical Operations
02:30 - 03:45 Panel Discussion: Coping with Thalassemia - Moderator: Laurice Levine, MA, CCLS (Children’s Hospital Research Center Oakland)
03:45 - 04:45 Breakout Session - Patients, Parents and Significant Others
04:45 - 05:00 Closing Remarks - Paul DiLorenzo, PhD (TSF President)
Children’s Session will be available