Jadenu - the new Exjade oral pill

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Offline Bostonian_04

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Jadenu - the new Exjade oral pill
« on: April 28, 2015, 06:24:01 PM »
We received the new Exjade once a day pill, called Jadenu....and it is life changing if your child can swallow a small pill. It is smaller in size than the multivit we take and no aftertaste....

However, we did have a higher co-pay than Exjade. So, we applied for co-pay assistance with the drug company and were accepted. In US, if you are not able to buy Jadenu (or Exjade) for higher co-pay , you can get the co-pay assistance from the drug company. There is no income limit but does have some restrictions on what kind of insurance you have...But still worth a try calling them up.
Quis custodiet ipsos custodes ? - Plato

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Offline Andy Battaglia

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Re: Jadenu - the new Exjade oral pill
« Reply #1 on: April 28, 2015, 11:56:49 PM »
Jadenu is exactly what everyone has been asking for in a chelator. A truly once a day, easy to take, get back on with your life, pill.
Andy

All we are saying is give thals a chance.

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Offline jay

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Re: Jadenu - the new Exjade oral pill
« Reply #2 on: April 29, 2015, 10:20:13 AM »
What is the price tag Bostonion_04 before going to insurance?

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Offline Parin

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Re: Jadenu - the new Exjade oral pill
« Reply #3 on: April 29, 2015, 10:40:57 AM »
Is it available in INDIA?

Regards,
Ashutosh T

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Offline jay

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Re: Jadenu - the new Exjade oral pill
« Reply #4 on: April 29, 2015, 11:29:34 AM »
No it is not available in India. It will take years. EU will get it sooner.

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Offline Nomad

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Re: Jadenu - the new Exjade oral pill
« Reply #5 on: April 29, 2015, 03:56:32 PM »
According to Novartis, 1-2 years for Germany.

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Offline Bostonian_04

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Re: Jadenu - the new Exjade oral pill
« Reply #6 on: April 29, 2015, 05:15:51 PM »
Jay,
we had a $1000 co-pay for 3 months supply. not sure what the amount is if we had no insurance.

The pill is really helping. The only side effect so far is itching but there is no rash. From the day my daughter started the pill, she is complaining of itching...the weather is changing too so not sure it is truly Jadenu or the dry skin.
Quis custodiet ipsos custodes ? - Plato

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Offline Andy Battaglia

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Re: Jadenu - the new Exjade oral pill
« Reply #7 on: April 29, 2015, 05:19:49 PM »
All it will take for India to get it is for Cipla to copy it.
Andy

All we are saying is give thals a chance.

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Offline Sharmin

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Re: Jadenu - the new Exjade oral pill
« Reply #8 on: April 29, 2015, 07:45:29 PM »
Bostonian,

I am glad to here that you have the pill.  I will ask for information to get my son on it.

Sharmin

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Offline Himanshu Kumar

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Re: Jadenu - the new Exjade oral pill
« Reply #9 on: May 01, 2015, 03:17:27 AM »
Is Jadenu a better chelator than Exjade? In what respect?
Regular transfusion, Keeping pre transfusion HB above 10 and Iron Chelation are the three mantras for thals to stay healthy.

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Offline Andy Battaglia

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Re: Jadenu - the new Exjade oral pill
« Reply #10 on: May 06, 2015, 02:31:06 AM »
Jadenu is Exjade, but in the from of time-release pills that can be swallowed.
Andy

All we are saying is give thals a chance.

Re: Jadenu - the new Exjade oral pill
« Reply #11 on: May 06, 2015, 03:32:57 PM »
That's a great news, Good Luck with new medicine.

I hope this works better with Liver function and get available in the UK sooner.

Best Regards,
Atin

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Offline Parin

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Re: Jadenu - the new Exjade oral pill
« Reply #12 on: September 03, 2015, 02:10:54 PM »
Any news about availability of Jadenu in India

Regards,
Ashutosh T

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Offline Parin

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Re: Jadenu - the new Exjade oral pill
« Reply #13 on: September 22, 2015, 09:28:33 AM »
Any news about availability of Jadenu in India

Regards,
Ashutosh T

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Offline Mukta

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Re: Jadenu - the new Exjade oral pill
« Reply #14 on: November 26, 2015, 10:32:39 AM »
Bostanian ,

Can you update us how the new iron chelation tablet Jadenu is working for your kid. Do you see positive improvements as compared to Exjade. Did you also get a Ferritin test done after moving onto Jadenu and do you see the results being better.

Anyone having any experience on Jadenu can you please share with the group as well.

Regards ,

Yogesh

 

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