Need your advice for E beta intermedia

Hallo Andy Sir and senior members of the forum need your valuable advice.
I am a E-beta thalasemia intermedia patient from West Bengal. I am 24 years old. I take homeopathic treatment for 10 years transfusion free Hb around 8.0-8.5 . But my health conditions become bad when I start to stay in hostel far from home during my      M.sc ( Chemistry ) degree.  Last November 2014 to July 2015 I have to take 5 transfusion after 2 month duration. Then I stop to take homeo treatment began to take treatment  under a Hematologist.
 Here are few details
                     Last BT  20. 07.15  pre transfusion Hb 4.3
   Starting hydrea from 27. 07. 15
                                 At 07. 08 15 Hb = 6.4 
                                At 09. 09. 15 Hb = 6.4                  then Starting wheatgrass powder 5 grams per day split the dose 3 times with hydrea. Then after 21 days Hb raise by 0.4 unit .     
                       At 03.10. 15  Hb = 6.8  from this date doctor stops hydrea only Wheatgrass powder.
              Then at 31.10 15  Hb = 7.0                                 After 40 days at 09.12 15 Hb = 6.6   Hb drops suddenly  but I have no fever or disease. My all the parameter are being normal only Bilirubin is 2.9  .
As Hb drops I request the doctor to start hydrea again. But he told that HU and WG are same thing , so can only continue WG about 1.6 gram 3 times per day.  He also say we don't give HU and WG together and Your Hb remains around 7.0. not increased too much.  I am totally confused.  Is he right  ?  As I taken WG for last 3 months Should I wait few months to gain result ? Should I gow to another doctor to start hydrea  ?  Or to start homeopathy treatment again with wheatgrass  ? I am too much depressed and now my study carrier all are interupted. 
Please advice me which is the best. 

You should take both hydrea and wheatgrass. They are not the same but they work together to give a better effect. There is one study that also showed that homeopathic methods also increased the value of hydrea, so why not take that as well?

Thank you Andy Sir. I am awaiting for your valuable  advice.  I can't believe you reply so quickly. Thank you very much.
I have read the topic about homeopathy and HU therapy together couple of days ago. 
As you say HU and WG work together to give better effect , then I remind that when I continue HU and WG together for 21 days I have noticed better  effect on my health conditions and Hb also raised by. 4 unit.

Please advice me about some queries.

As I am E beta intermedia So is hydrea effective for me  ?
I took 500mg HU daily  for my 46 kg weight.     
 is it right dose ?
 My all the parameter being normal except Bilirubin.
So which parameter should be observed during HU therapy  ?
As my last blood transfusion at 20.07. 15 and now my Hb remains 6.6 and ferritin 896.  So should I go for another Transfusion  or wait sometime  ?
 

Abihishek ,

Since you are in India if you can you should plan to meet Dr Vijay Raman from Pune once. From what I have understood he is one of the good docs who specializes in HU and Wheatgrass combination and has got many successful cases under him. Your case seems to fit well with his kind of treatment.

Hello Mukta,  I heard about Dr Ramanan in this forum .
Will you tell me how much expensive he was ?  Can I have affordable to me  ?

Abhishek ,

Our first visit to him where he saw our sons case costed us 5000 RS . Our son was too small so he just suggested us to start on wheat grass for time-being.  We are yet to visit him again but I think for subsequent visits his charges are Rs 2000.

Abhishek,

I definitely agree that you should contact Dr Ramanan and get the proper guidance. He can best tell you if you can benefit from his therapy. Many patients have had good success with his treatment.

If your Hb does not rise soon, you should take a transfusion, but continue to take your HU etc.

Hello Andy,

My baby is now 27 months old and getting WG from July'2015.Earlier she took transfusion after 5/6 weeks and now the same.That means WG not increase her HB level.

What do you think its the time to apply Hydrea and Wheatgrass both..

Please advice.

If your doctor will allow you to try the hydroxyurea under his supervision, it is worth trying. Continue the wheatgrass.

Hello Andy Sir 
                             Thank you for your advice.
As I live in a village. If I go pune and take treatment under Dr Ramanan, it takes 2-2.5 months to arrange all the things . Can you give me contact info of some indian  patients who take treatment under Dr Ramanan. I can get an idea how I manage all the things.

I shall go for a transfusion next week. I also take WG powder 3 times per day.
But now Can I take HU 500 mg daily for 1 month  ?

Hello Mukta 
                     Thank you for your reply. You get an idea.
You visited first time please share your experiences when you visit 2nd time. 
If I go for first time can you tell me how much much amount of money I have to arrange  ?

Hello Andy,

Thanks for your reply.Though last time was 15 times transfusiuon of my baby but still I can't accept and tolerate it and you know how much she suffered by fever and shaking.So always I search the way how the transfusion could avoid.For that always take your advice.

I discussed 2 doctor but both are not interested to give Hydroxyurea.They adviced wait up to her 3 years.Though it has side effect but I have read in this forum babies are taking HU.But why they are not interested I don't know...

Abhishek ,

As I said the first visit to him costed us around Rs 5000 and I think next visit his cost is around Rs 2000 in his private clinic.
I think he even visits Ruby hospital in Pune where it would be more economical to see him. I dont have any idea on the appointment process but you may call the hospital and check.

Will share my exp when I meet him for second time.

Hallo Andy Sir
                            Please reply. ....

       I'll take a transfusion next week. It will take approx 2 months to take treatment under Dr Ramanan. Until then Can I take HU  ( 500 mg daily ) along with wheatgrass  ( approx 5 grams per day )    ?

      Please reply. ..

Abhishek2,

If you are under a doctor's supervision, you can take hydroxyurea. I would not suggest it unless a doctor has prescribed it for you.

Are you on Facebook? It might be easier to connect with patients treated by Dr Ramanan in our Facebook group at https://www.facebook.com/groups/thalpal/