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how much exjade for long term users

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Offline htuongvy

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Re: how much exjade for long term users
« Reply #15 on: February 19, 2016, 11:05:49 AM »
Quote from: Andy on February 19, 2016, 12:40:17 AM
htuongvy,

Are there any other forms of Exjade (Asunra, desirox or similar) available to you? Or Kelfer?

There is only Kelfer and Exjade, but now Kelfer is not available.
If i want to buy online, what website is reliable?
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Offline htuongvy

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Re: how much exjade for long term users
« Reply #16 on: February 20, 2016, 06:13:12 AM »
My son has just tested the ferritin this morning. It is now 370. So i stop Exjade or still use the maintaince dosage?
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Offline Nomad

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Re: how much exjade for long term users
« Reply #17 on: February 21, 2016, 12:21:27 PM »
You can also lower the dosage for a while. In arrangement with your doctor about the exactly amount  of course.
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Offline Dharmesh

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Re: how much exjade for long term users
« Reply #18 on: February 21, 2016, 01:16:40 PM »
Quote from: htuongvy on February 19, 2016, 09:14:06 AM
Hi HANUMANTAASHRIT,
What do you mean DFP, DFX ?Would you pls explain for me?  Iam not good at English, but i try my best for my son :( 

DFP = DEFERIPRONE = KELFER = FERRIPROX = L1

DFX = DEFERASIROX = ASUNRA = EXJADE

the short forms helps while writing a post. sorry it caused trouble to u
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Start listening your body, it always gives signs
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Offline Dharmesh

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Re: how much exjade for long term users
« Reply #19 on: February 21, 2016, 01:19:16 PM »
Quote from: htuongvy on February 19, 2016, 11:05:49 AM
There is only Kelfer and Exjade, but now Kelfer is not available.
If i want to buy online, what website is reliable?

Means till date Kelfer was available in Vietnam?
Why they stopped supplying Kelfer there?
Do you have any information about it?
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Start listening your body, it always gives signs
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Offline htuongvy

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Re: how much exjade for long term users
« Reply #20 on: February 21, 2016, 03:23:36 PM »
Quote from: HANUMANTAASHRIT on February 21, 2016, 01:16:40 PM
DFP = DEFERIPRONE = KELFER = FERRIPROX = L1

DFX = DEFERASIROX = ASUNRA = EXJADE

the short forms helps while writing a post. sorry it caused trouble to u
.  I understand.  Thanks so much. I use tranlate.google, so that my english is not fluently. I hope you understand.
« Last Edit: February 21, 2016, 03:32:38 PM by htuongvy »
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Offline htuongvy

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Re: how much exjade for long term users
« Reply #21 on: February 21, 2016, 03:29:23 PM »
Quote from: HANUMANTAASHRIT on February 21, 2016, 01:19:16 PM
Means till date Kelfer was available in Vietnam?
Why they stopped supplying Kelfer there?
Do you have any information about it?
    I can't buy directly from Kelfer. I buy from a mediate pharmacy. They import kelfer for a long time. But now they stop. I don't know the reason.
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Offline htuongvy

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Re: how much exjade for long term users
« Reply #22 on: February 22, 2016, 04:13:09 AM »
I have just ctc with another pharmacy, they have EFFEREX ( DEFERIPRONE ). Is it ok ? It is useful for chelating iron in heart. Is that right ? So that my son need MRI test in order to know where iron overload ? with his ferritin abou 1100 ( now decrease 370 ) i don't need to worry so much, do i ? I can't sleep every night when i think about him
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Offline Andy Battaglia

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Re: how much exjade for long term users
« Reply #23 on: February 22, 2016, 09:46:50 PM »
Deferiprone is the same drug as Kelfer and Ferriprox. This is a good solution.
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Andy

All we are saying is give thals a chance.
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Offline htuongvy

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Re: how much exjade for long term users
« Reply #24 on: February 23, 2016, 06:12:10 AM »
Quote from: Andy on February 22, 2016, 09:46:50 PM
Deferiprone is the same drug as Kelfer and Ferriprox. This is a good solution.
Tks Andy. Tks all
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